Re: Please help me.
From: Georgie (anonymous@obgyn.net)
Tue Feb 28 17:48:16 2006
Hi Anonymous,
I agree with the other ladies here - please see a gyn if you can. It
took my family doc 10 years to refer me to a gyn (from when I started
complaining when I hit puberty at 15). The gyn took one look at my
family doc's notes and said straight off "classic signs of endo, you
don't have to put up with this" and promptly booked me in for the lap
for diagnosis/removal of disease (didn't really help with the pain
though . . .).
If you see a doc that isn't so sympathetic or makes you feel brushed
off, find another one. Go armed with a list of questions that you want
answers to. Having a diagnosis isn't the end to it but it is very
empowering to have a name to call the pain.
If you think you have endo you should also read "Endometriosis: the
complete reference for taking charge of your health" (Mary Lou Ballweg -
Endometriosis foundation) and "Endometriosis: the key to healing through
nutrition" (Dian Shepperson Mills). They are the best resources I've
found with info on all aspects of this disease.
Good luck!
--
Georgie
At Mon, 27 Feb 2006, Sami wrote:
>
>At Mon, 27 Feb 2006, angela wrote:
>>
>>At Sun, 26 Feb 2006, Linda wrote:
>>>
>>>Dear Anonymous,
>>>
>>>Your letter brought a tear to my eye as well.. Please know that so many
>>>of us know how you feel. The sadness, frustration, fear, isolation,
>>>etc...can be unbearable sometimes, but knowing that there are other
>>>women out there that are going through similar circumstances does help.
>>>Also, knowledge helps. Please see a gynecologist so you can get some
>>>much needed answers. Even though the outcome sometimes isn't pleasant,
>>>I think it's better to know what is going on with your body than to keep
>>>guessing. That will drive you crazy!
>>>
>>>You are not alone, we are all here for you!
>>>
>>>Linda
>>>
>>>At Sun, 26 Feb 2006, anonymous wrote:
>>>>
>>>>hi everyone. I am 19 years old and i think i might have endo. About
>>>>two years ago i started to have painful bowel movements during my
>>>>period. The pain only lasted throughout my period - on the more heavier
>>>>days. I didnt think much of it because that is when i started my diet,
>>>>so i basically correlated the two together. However, recently things
>>>>have started to get extremely abnormal for me. My period never comes
>>>>when it's suppose to last month i had my spottings as well as a heavy
>>>>flow for two weeks and than my real period started..i feel ike every two
>>>>months i always get spottings and then right before my period three days
>>>>or so i always always get brown spottings. BUT for the last few months
>>>>or so my lower back has started to hurt so much. The pain is horrible.
>>>>when i sleep i cant even trun...if i get up really fast...the pain is
>>>>unbearable and its even worse during my period. another symptom has
>>>>been how i have become as an individual. I have no jokes intended
>>>>become a raging lunatic. i have no boundaries with how i react to
>>>>things and all i do is cry and pitty myself.
>>>>
>>>>I cannot take it anymore as i am slowly dying inside. the throught of
>>>>not being able to have children is waht has really gotten me to be this
>>>>person. All i do is cry and i enever want to do anything but stay home
>>>>in my head in sweats because i feel different. Nobdoy seems to
>>>>understand me. I tell them what is going on and they say its nothing
>>>>everyone has those symtoms its only normal. I just want to crawl up in
>>>>a corner and not feel this way anymore. I cannot take it anymore. I
>>>>know noone who is going through what I am. The only thing is that i
>>>>dont have cramps or anything just normal ones that go away with advil
>>>>and such...but the bowl movements as well as the pain in my lower back
>>>>are unbearable.
>>>>
>>>>I have never been to a gyno and that is why i dont know if i have endo.
>>>>I dont want to go to the gyno because i read somewhere that those who
>>>>have endo will have horrible experiences at the gyno. Also, its not
>>>>like i want to tell everyone my personal business or anything, but i
>>>>think its important to note that I am a virgin and would not know if
>>>>there is pain.
>>>>
>>>>Please excuse any uncomfortable information but i dont know what esle to
>>>>do i am going nuts and i needed something...someone to be a friend and i
>>>>hope this forum will bring me that.
>>
>>--
>>hi my name is angela im 32 and had symptons when i was your age. the upset and frustration will wane if u seek help. ask doctor to send u hospital about endo. they will put a key hole surgury instrument through your belly button after initial appointment to have a look if they think u have it. i am telling u this so it is not a shock but i can asure u i doesnt hurt and u will feel fine after ward. if u have a mild case which still can be very pain ful and depressing theres loads u can do. doctor may try u with paracetamal but i get more relief from eating a smartie they may work for u and u dont know unless u try it. if it doesnt work doctor can conbine this with an anti inflammatry tablet, make sure u eat a biscuit or snack as u may feel an upset tummy. yoga and palates may help when u feel well enough and can get them on dvd it is said that eating meat and dairy products doubles the rate of growth of endo if u try replacing meat with mushrooms . if paracetomal doesnt work any more after a time doc can give u very strong painkillers i get co drydomal and antinflamotrys together for bad days.. doctor advsed me to take my contraceptive pill continually for 9 months which was great as no periods and it made my endo shrivel up and die for a while like it does during pregnancy but it came back again now. your advantage is u can take contraceptive pill for years to control its growth and pain as your young. doctor advised me now to have a period evert 3 to 4 months i was on the mini pill before as well which u take continually any way with no break to bleed, but u only can take it the same time every day or up to 3 hours after, i got caught pregnant for forgetting what time i should take it and taking it late ,so use this one later in life when u cant take the normall pill anymore as i cant cause it gives me migranes as i been on it so long(15) years.if it gets worse still they can operate or give u hormone drugs. once u get soted with doctors u will feel happier an
>d have the strength to not let it beat u and i now have a period every four months and book a week off work for it to relax, then i dont feel sorry for myself and have energy to do stuff , so u can work around it. hope this helps angela.
>>
>DEAR ANON,
>welcome to you & just know that all the ladies in here are supportive,
>honest and you can ask ANY Question anytime.
>
>Seeing a Gyn was not painful for me, you are definitely going to be a
>little nervous (we all are) but it is important to take the first step
>and find a good Dr who knows Endo.
>
>I am in Australia, so i will not recomend you to my Dr or surgeon. As
>it's a long way to come... but if you are comfortable sharing your
>state, there may be someone in here who can personally recomend one.
>
>I understand that you are frustrated, in pain & that you have no-one to
>share your feelings with.
>
>Tara suggested recording your symptoms, it's a good place to start,
>take care & a big hug to you Anon,
>
>Sami koala
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