|
Re: Anyone found that your pelvic pain was from Interstitial Cystisis--To Jamie
From: Jamie (anonymous@obgyn.net)
Tue Feb 28 09:38:20 2006
Hi,
I usually have IC pain daily some days it much worse than other days.
Some days I can barely walk around. As for the peroid, I only have one
every 3 months. I just had one and I think that I had bladder pain. Who
knows, it may be a hormonal thing. I do know that it is very hard to
distinguish between IC and endo pain. I am getting a little better!
Jamie
At Fri, 24 Feb 2006, m wrote:
>
>Jamie
>Thanks for your response. Can I ask you is your IC pain a daily thing
>(and is it really bad during your period?) or is it just during
>flareups? I ask this because my pain is every day but gets worse the
>closer I get to my period. then during my period I have viscious
>cramps. it's so hard for me to believe that my pain is blader related
>sine Ive had horrible periods my whoellife, I had endo, and my last
>surgeon suspected adenomyosis because a lot of pain seemed to come from
>my uterus. Have you had pain since begining menstruating or did the IC
>pain come later?
>Thanks so much for your help!
>At Fri, 24 Feb 2006, Jamie wrote:
>>
>>Hi,
>>I had a cystoscopy last October right after my lap. With the cystoscopy
>>they are able to look inside the bladder and take a biopsy. I was
>>diagnosed with IC.
>>For years, I thought my pain was due to my endo. But everytime I would
>>have a lap the doctor would find very little endo.
>>When I have an episode, my bladder becomes very inflamed and presses on
>>nerves making my back and side hurt. It's very weird. But I have been
>>able to find out what I can and cannot eat. I must say that it's not
>>very fun having IC, but at least it's not deadly!
>>I think that you should have a cycstoscopy done to at least rule out IC.
>>It is hard to figure out if the pain is from IC or endo or something
>>else. Just make sure that you are asleep during the procedure.
>>I have been watching what I eat, take vicodin sometimes, and take
>>Elavil. There are other things that you can do to help with the pain.
>>You can go the IC website to help. http://www.ic-network.com
>>Good luck!
>>Jamie
>>At Thu, 23 Feb 2006, m wrote:
>>>
>>>Hey,
>>>
>>>I have had pain with periods since my periods started. Now, about 15
>>>years later, I'm at the point of severe pain every day. I take usually
>>>oxycodone daily. I have had 2 laps, the last one about 5 mos. ago--4
>>>areas were foun with endo and the edno was removed. Still, i have pain,
>>>even a bit owrse than before.
>>>
>>>I started thinking of getting my uterus out because my dr thought I
>>>mighthave adenomyosis, since they were pretty sure all the endo was
>>>taken otu but I got no relief. Well now my dr. wants to rule out IC.
>>>The urologist wants me try all kinds of medicine and a
>>>cystoscope--though he admits thre isno real tets that is truly
>>>definitive for IC.
>>>
>>>--
>>>My quesiton is: If Ive had period pain my whole life, and have had endo,
>>>and my pain FEELS liek it's comign form my uterus and other pelvic areas
>>>and not from my bladder (even though I know the bladder is in the pelvis
>>>too and I do have the sympoms of having to pee then onlt being able to
>>>get out a few drops sometimes) and my pain is cyclic based on my period
>>>(liek gets worse before and durign period, then betetr for a few days
>>>after my peirod) doesnt it make sense that I have a obgun issue that is
>>>causing the pain and not a urology issue.
>>>
>>>Ive had soem small bladder issues (whT I mentioed above) off and on for
>>>about 6 years (also I had a good bit of endo on my bladder and it was
>>>removed) but Ive had pms, and menstrual pain, etc for at least 15 years.
>>>Im so sure there is eithe rmore endo, adhesions, or soemthign going on
>>>with my uterus or ovaries, and not my bladder that is causign the pain.
>>>i read a bunch of IC stories and none fit my profile at all. But the
>>>drs still act like that migth be why ive had this pain even though it
>>>feels just like my peirod pain.
>>>
>>>Has anyone gotten treated for iC and then found that the pelvic an they
>>>thought was from endo or another obgyn disease was cured from the IC
>>>treatment? I think this is just another wild goose chnase just liek
>>>before my 2nd lap showed lots of endo (and I htink thats because I had a
>>>specialist do it that time--the first time they couldnt find any)but
>>>drs. kept tryignt o tel me I did nothave endo even though I had all the
>>>symptoms!
>>>
>>>Thanks for your help anyone who can share their experience with me.
>>>
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)