Re: How can this be?Another Cyst so soon after Lap,How do I approach my Gyno?
From: Storm (anonymous@obgyn.net)
Tue Feb 28 05:06:20 2006
Hi all,
Thanks once again for all your helpful comments :-)Tara fom L I'm in
Ireland!I wish we COULD clone your Dr!!!
My Gyno has just phoned me back (24hrs later)he has basically gone from
telling me on 02/02/2006 that I couldn't possibly have another cyst or
endometriosis to (after I called the Hos and asked them to fax the
results of the scan I organsied 24/02/06 through my GP,which showed lo
and behold a 5.5cm CYST!!)to him now telling me on the phone that we
need to remove the ovary asap!!!!
I think this is drastic and I am very reluctant to do this.He tells me
that I must have endometriosis INSIDE the ovary.Is this possible?
He skirted around the fact that 1)Did he miss this cyst in my Lap in Dec
and 2)If it did grow back why did he tell me on 02/02/06 that I had 'No
gynecological
Probs' and I 'couldn't possibly have another cyst'.
He is supposed to be the top Gyno/ob in the country (But I don't know
about his experinces with actual Endo)He did say that if I wanted a
second opinion he had no problem with that.All that could take weeks and
weeks, meantime I sit here in terrible pain.I'd say that cyst is
growing.
What do I do?????I'm reluctant to see another Dr,I don't know why
really, more the thoughts of going through everything again and again
and possibly not being listened to again and again.I simply don't have
the energy or the will to go through it all.
I am determined NOT to have an ovary removed.Why???I don't know two
reasons I suppose, physicologically I couldn't BEAR the thought of them
removing part of me, it just TOTALLY Freaks me out, I'm having serious
problems mentally with it.I may be single 37yrs old but I want Kids one
day.My gyno told me that right now that I have a 'perfectly good right
ovary'.HOWEVER I didn't say but I am also experiencing stabbing pain in
my right ovary.I have a feeling soon enough there will be endo
discovered in that too and that it is in fact NOT a 'perfectly good
right ovary'.
I have gone from having no probs in early Novemeber to suddenly all
this, some say it takes 9 years to be diagnosed with Endo.It took me 3
weeks, and now suddenly it's all too much for me to take in.
--
Storm
Ps Someone (sorry I can't remember your name)gave me two VERY useful
links on Ovarian Cysts, I learnt alot from them Thank you)I'll try
googling but if anyone has a few handy links on endo INSIDE the ovary
and what it means etc,that would be extremly helpful :-)
At Mon, 27 Feb 2006, Tara wrote:
>
>Hi Storm,
>
>You have been extremely helpful in here, especially to me. Thanks for
>your thoughtful posts! I just want to say that I had a laparoscopy on
>Monday the 13th of this month (no cysts to be found on either ovary). On
>Thursday the 23rd of this month (10 days later) I was absolutely sure I
>had appendicitis in my right lower abdominal quadrant. My pain too, was
>"higher than the ovary". I went to my gynecologist, we did a CT scan,
>and then it was found that I developed a 3.5cm right ovarian cyst within
>a period of 10 days! I do have to say that she was so kind, believed me,
>we did a scan, and she called me with the results in a very short period
>of one day. I'm so sorry that you were blown off in your doctor's
>office. It is time for a new doctor Storm. You have to trust your
>feelings and when they give you really bad vibes, take forever to see
>you, or say things like "they will probably find nothing" you need to
>move on. I don't know where you live, I'm sorry I can't remember, but
>there has to be another doctor that can help you! I would clone mine if
>I could, but that has only been done in sheep and cats so far!!!
>(((HUGS)))!!
>
>At Mon, 27 Feb 2006, Storm wrote:
>>
>>Hi all,
>>
>>I feel so selfish sometimes posting in this forum.I feel all I do is ask
>>and never offer anything in return for all the wonderful advice I have
>>rec'd on this forum.I just read Jenny's advice on if you've been newly
>>diagonised with Endo and it has given me the courage to yet again ask
>>for help.I am so devastated by this disease and more importantly by the
>>treatment I have received from Doctors here in Ireland.If it's ok I will
>>give you a brief a History as possible.
>>
>>Mid November had a sudden sharp shooting like pain in my lower left hand
>>side, after these eased (after a few mins)I was left with a dull ache
>>for the rest of the day.My period started that day but the pain didn't
>>feel normal.Went to my local Dr who suspected a cyst and referred me for
>>a pelvic ultra sound scan.
>>Beginning Dec a complex 5.5cm ovarian Cyst was discovered and was in
>>very bad pain and was referred to a Gyno (appartently one of the Top
>>Gyno/Obs in the country)He saw me and rushed to get me a bed in Out
>>patient for a Laporoscopy within 10 days, he told me he suspected I also
>>had endo.
>>End of Dec I have my laporoscopy. I am told that NO CYST was discovered
>>and that I had 'mild endo' which he lasered.I feel great for TWO
>>WEEKS.After only two weeks I feel the pain come back slightly.
>>Mid Jan the pain is unbearable.I see my local Dr who tells me it's just
>>not possible that I am in pain so soon after the Op, She writes a letter
>>to the local Hospital to schedule a scan in the next few weeks but tells
>>me she's confident they will find nothing.
>>End of Jan the pain is just too much I nearly end up in A&E.I ph my
>>Gyno, he is on Hols but his colleague phones me back tells me that it's
>>just not possible that I am in pain again, they never found a cyst in
>>the first place and they would under no circumstances operate again
>>(like I wanted THAT??!!)and to just 'wait&see'.I was distraught.HOWEVER
>>the day my gyno is back he phones me to make an appointment (I hadn't
>>had a follow up from the op anyway)asap.I am delighted because I feel he
>>must be taking me seriously if he's seeing me so soon.
>>The 2nd of Feb I go to my appointment it is for 2.30pm there are SIX
>>people to be seen before me (backlog from his Hols)still he manages to
>>see me at 3.10pm!I start to tell him of the terrible pain I've been in
>>since two weeks after Op.I tell him the pain is THE EXACT same except
>>WORSE than when I orginally went to see him.He tells me that the Cyst
>>was gone when they opened me (no I didn't ask where it went to & yes I
>>wonder?)he lasered a few spots of Endo and that was it.He told me it was
>>not possible that I have either a Cyst or endo at the moment.I told him
>>I'd been through 3 cycles since op.He just 'hhmmmmed and hawwed' and
>>wrote things down never asked me anything, had a brief look at me asked
>>where the pain was, when I showed him he said 'that's too high you're
>>ovary isn't up there' (I felt SO stupid of course I knew that,but I
>>can't help where the pain is)but told him this is exactly where I told
>>you the pain was before my op.He totally dismissed me from his office
>>and told me 'there is NOTHING gynoclogical wrong with me and if I was
>>still in 'pain' in 4 weeks to call him & he would refer me to a bowel
>>specialist.I got his bill in the post the next day!!!I was 'dimissed' he
>>had even said to me going out the door 'Hopefully I won't be seeing you
>>again'
>>23rd feb my previously scheduled Ultra sound scan. I have been in
>>sometimes mild sometimes terrible pain since 2nd Feb.The nurse is so
>>suprised with what she see's she calls a Dr.And YES Guess what????There
>>it is in the SAME side as the last time (left)and the SAME size 5.5cm
>>Yeap (ANOTHER?) Cyst???!!!Was I suprised?No not really.
>>But the thing is WHERE do I go from here?I rang my Gyno this morning
>>spoke to his sec who said she would get the results faxed to her asap
>>and get my gyno (who would be in Clinic til late morning) to phone me
>>back asap.Will it's afternoon now and he still hasn't called.I'm sure he
>>will, but what do I SAY to him???????Has he made a mistake and missed it
>>in the op(the radiologist seemed to think that maybe he'd missed it as
>>my left ovary is unsually high,also explains why my pain was so high!)or
>>when he told me on 2nd feb it just wasn't possible that I had another
>>cyst............
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