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Re: New Here - a little long...From: Sami (anonymous@obgyn.net)Mon Feb 27 23:34:37 2006
At Mon, 27 Feb 2006, Heidi wrote: > >Hi, >I'm new to posting - thank you to Tara who helped me out! I was >diagnosed with endo. one year ago at age 23. I have been experiencing >pain since the age of 18 and was blown off by a few doctors before one >finally took me seriously. >I am fortunate in the fact that I do not have the unbearable cramps that >so many of you suffer. However, my pain is severe during intercourse. I >was wondering if anyone else experienced this and had any suggestions. >My husband and I have tried all the lubrications that are known to >mankind (they don't help). I've been on Lupron, Danazol and the birth >control pill. Nothing ever works and it has become a major source of >frustration for me. To top it off, when I was on the danazol and >Lupron, I gained 19 pounds which has been horrible for my self image and >I haven't been able to lose it despite working out consistently. >My husband is wonderful about all of this, but the emotional ride it >currently has me on seems to be more painful at times than the actual >physical pain I experince. >Does anyone have any suggestions? Has anyone ever visited a counselor >about their endo.? Any input would be greatly appreciated! >Thanks! >Heidi Hello Heidi, welcome !! I know where u are coming from as i have always had Endo on my Utero-Sacral Ligaments which causes excrutiatingly painful sex. I've had 5 Op's i've just turned 28 this month & got engaged at the end of last year. I have seen counsellors & Psychologists & Psychiatrists & whilst talking is beneficial it does not change my physical reality. I am sorry but i can't really offer any suggestions as i have not found anything that helps....(sad but true). I try not to focus on the pain but damn it hard..!! This is a senseitive topic, and one that i have not taled about befopre in here. But thanks for your honesty & please let me know if you find something that helps..best wishes Sami koala
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