Re: I am so scared to make a decision...kinda legnthy..To: Loretta and Tara
From: Dena (anonymous@obgyn.net)
Mon Feb 27 20:33:44 2006
Hi Loretta,
I agree with Tara about you switching pain medicines now that I know
about morphine slowing the intestines and stomach motility. That would
explain a lot of my constipation issues over the past year. Before that
I was on the fentanyl patch. I must say, that worked so well! I was on
it a few years back and was up to a very strong mg patch. Then I went
off after my hysterectomy for a little while when I was feeling better.
When the pain came back, I tried it again (lower mg patch) and it made
me so dizzy and constantly nauseas that I asked for something different.
I was never told about that side effect of the morphine.
Tara, thank you for pointing that out! :)
Good luck Loretta, with everything. I'll be thinking of you often.
At Mon, 27 Feb 2006, Tara wrote:
>
>Loretta,
>
>As a nurse, I'm so sad to hear that you can hardly eat and have to take
>medications to make the food liquidy to pass through your system. This
>is just my opinion, but you seem to be one of those horrible
>endometriosis cases that would benefit from a hysterectomy and complete
>ovary removal. This may include a bowel resection, or a colostomy, but
>you will be able to eat again and function again. Don't worry about the
>Morphine injections and the reaction of your family, friends, horrible
>doctors and nurses, YOU NEED PAIN MEDICATION!!! I'm a little concerned
>about the choice of Morphine though. If you were a patient of mine I
>would ask for a med switch. I have given a lot of Morphine in my time
>and it tends to slow the intestines and stomach motility. I would
>definitely ask about some other pain relievers that are as strong, such
>as Demerol IV or Fentanyl patches. These do not tend to slow the
>motility through the system as bad. Fentanyl patches are great for long
>term steady doses of medication in the system. I would definitely get
>surgery or treatment right away if I were you. You sound like you have
>one of the worse cases that I have heard about Loretta, I'm so sorry.
>Please try to stay strong even though it has got to be hard to:) I'm
>here for you.
>
>At Mon, 27 Feb 2006, Loretta wrote:
>>
>>I have had endo since 13,hospitalized many times then diagnoed @18.
>>Had a child at 15 that I had to let my parents raise as my boyfriend was
>>very abusive and i had no means to support him. At 18 I married and we
>>tryed to start a family, it was the most important thing to both of
>>us.My periods and pain had always been out of this world and i was
>>hospitalized with a ovarian cyst that was rupturing.They had found while
>>operating that I was covered in endo and was scarred badly , they said I
>>must have had alot of cysts before as my ovaries were a mess.I was in a
>>large teaching hosp in Vancouver Canada and the specialists said I was
>>so scarred that i likely wouldnt be able to concieve again. They did my
>>first laparotomy and tuboplasty to try to clear out my tubes. I tried
>>again for 2 years and my husband drifted to other women as he could not
>>handle all my pain,hospitalizations,surgery,then still, no kids.We
>>divorced. I married again and this one also wanted kids and we saw
>>another infertility spec who said he would repeat the tubo and put me on
>>fertility drugs. Did it,..had a tubal..i was DEVISTATED. I kept
>>getting large cysts and the pain got disableing. the short of it is, we
>>tried everything , nothing. That marriage also didnt survive. I am 40
>>now. a dozen surgerys later,countless drugs...I now have stage 4
>>endo,and frozen abdomin from all the scar tissue. One and a peice of
>>one ovary left (it still gets cysts on it!!)and had stage 1 cervical
>>cancer.
>>Almost every organ in my ab is stuck together in a tight ball, many
>>surgerys to free them but they gave up and said they cant tell one thing
>>from the other and if they tried again they may cut something vital and
>>it may hurt my bladder or I may be on a bowel bag. My bowel and
>>intestine is so scared that nothing moves at all, I can only eat 1 meal
>>a day and every night i have to drink a purgative that u take before
>>surg that turns it to "water" so it cleans me out cause passing anything
>>solid is excurciating. I bleed all the time but they cant even take out
>>my uterus cause of the scar tiss.when i get cysts there is nothing i can
>>so till it works itself out. By rupturing or whatever it does. Hormons
>>to stop my period dont work and make me sick. I am on injections
>>everyday of morphine and get hassled ALL the time from nurses and some
>>Dr's at hosptals i am admitted to.I have lost all my familys support
>>since taking the medication for pain. My husband of 10 years is the
>>only support i have and he wants me to take it cause he says he see's
>>thats the only way I have a life and can function.But they make me feel
>>like a loser for taking it. It lost the effect of making me a little
>>"high" LONG ago and my pain specialist says its the best thing out
>>there. My Family Dr supports our choice.I was in bed for a year from
>>pain and depresson before they used it.
>>But i feel so bad when they hassle me. The specialists told me if I
>>really insist they will try more surgery but I have to accept the
>>results if it goes bad, and there is a HIGH chance it could.If my bowel
>>is perferated I could die.If i keep on it i may last it out to menopause
>>and maybe some pain will let up. They say i may get a bowel blockage in
>>the meantime and i may have to have the surgery by emerg anyway. I dont
>>know if i should wait and see or go get it over and accept what may
>>come.I need someone's view that wont hassle me or my choices so far. I
>>do everything else to help myself in EVERY other way! I MEAN I DO IT
>>ALL! Diet,excersize(what i can)Meditation prayer,....
--
Dena
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