Re: I am so scared to make a decision...kinda legnthy..i need some advice
From: Tara (anonymous@obgyn.net)
Mon Feb 27 19:51:15 2006
Loretta,
As a nurse, I'm so sad to hear that you can hardly eat and have to take
medications to make the food liquidy to pass through your system. This
is just my opinion, but you seem to be one of those horrible
endometriosis cases that would benefit from a hysterectomy and complete
ovary removal. This may include a bowel resection, or a colostomy, but
you will be able to eat again and function again. Don't worry about the
Morphine injections and the reaction of your family, friends, horrible
doctors and nurses, YOU NEED PAIN MEDICATION!!! I'm a little concerned
about the choice of Morphine though. If you were a patient of mine I
would ask for a med switch. I have given a lot of Morphine in my time
and it tends to slow the intestines and stomach motility. I would
definitely ask about some other pain relievers that are as strong, such
as Demerol IV or Fentanyl patches. These do not tend to slow the
motility through the system as bad. Fentanyl patches are great for long
term steady doses of medication in the system. I would definitely get
surgery or treatment right away if I were you. You sound like you have
one of the worse cases that I have heard about Loretta, I'm so sorry.
Please try to stay strong even though it has got to be hard to:) I'm
here for you.
At Mon, 27 Feb 2006, Loretta wrote:
>
>I have had endo since 13,hospitalized many times then diagnoed @18.
>Had a child at 15 that I had to let my parents raise as my boyfriend was
>very abusive and i had no means to support him. At 18 I married and we
>tryed to start a family, it was the most important thing to both of
>us.My periods and pain had always been out of this world and i was
>hospitalized with a ovarian cyst that was rupturing.They had found while
>operating that I was covered in endo and was scarred badly , they said I
>must have had alot of cysts before as my ovaries were a mess.I was in a
>large teaching hosp in Vancouver Canada and the specialists said I was
>so scarred that i likely wouldnt be able to concieve again. They did my
>first laparotomy and tuboplasty to try to clear out my tubes. I tried
>again for 2 years and my husband drifted to other women as he could not
>handle all my pain,hospitalizations,surgery,then still, no kids.We
>divorced. I married again and this one also wanted kids and we saw
>another infertility spec who said he would repeat the tubo and put me on
>fertility drugs. Did it,..had a tubal..i was DEVISTATED. I kept
>getting large cysts and the pain got disableing. the short of it is, we
>tried everything , nothing. That marriage also didnt survive. I am 40
>now. a dozen surgerys later,countless drugs...I now have stage 4
>endo,and frozen abdomin from all the scar tissue. One and a peice of
>one ovary left (it still gets cysts on it!!)and had stage 1 cervical
>cancer.
>Almost every organ in my ab is stuck together in a tight ball, many
>surgerys to free them but they gave up and said they cant tell one thing
>from the other and if they tried again they may cut something vital and
>it may hurt my bladder or I may be on a bowel bag. My bowel and
>intestine is so scared that nothing moves at all, I can only eat 1 meal
>a day and every night i have to drink a purgative that u take before
>surg that turns it to "water" so it cleans me out cause passing anything
>solid is excurciating. I bleed all the time but they cant even take out
>my uterus cause of the scar tiss.when i get cysts there is nothing i can
>so till it works itself out. By rupturing or whatever it does. Hormons
>to stop my period dont work and make me sick. I am on injections
>everyday of morphine and get hassled ALL the time from nurses and some
>Dr's at hosptals i am admitted to.I have lost all my familys support
>since taking the medication for pain. My husband of 10 years is the
>only support i have and he wants me to take it cause he says he see's
>thats the only way I have a life and can function.But they make me feel
>like a loser for taking it. It lost the effect of making me a little
>"high" LONG ago and my pain specialist says its the best thing out
>there. My Family Dr supports our choice.I was in bed for a year from
>pain and depresson before they used it.
>But i feel so bad when they hassle me. The specialists told me if I
>really insist they will try more surgery but I have to accept the
>results if it goes bad, and there is a HIGH chance it could.If my bowel
>is perferated I could die.If i keep on it i may last it out to menopause
>and maybe some pain will let up. They say i may get a bowel blockage in
>the meantime and i may have to have the surgery by emerg anyway. I dont
>know if i should wait and see or go get it over and accept what may
>come.I need someone's view that wont hassle me or my choices so far. I
>do everything else to help myself in EVERY other way! I MEAN I DO IT
>ALL! Diet,excersize(what i can)Meditation prayer,....
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