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Re: centley diagnosed with endo-My story_Help Please
From: falacia (anonymous@obgyn.net)
Mon Feb 27 12:54:26 2006
Dawn ~
You have definitely come to the right place for support concerning endo
and other painful 'women problems'. I'm sorry to hear that your doc did
not explain things to you better. I would research the Lupron a little
before deciding to take it. There are other treatments available even
if your doc did not tell you about them . I tolerated the Lupron shots
well but there are lots of women who don't. And it has a side effect of
bone loss. I do think it's a good idea to seek a second opinion since
it sounds like your current doc isn't doing the best job for you. You
need a doc who will listen to your complaints and explain things
thoroughly to you. If you post where you live maybe someone in the
forum can recommend a good doc. Best of luck to you in finding a new
doc and hope the lap gives you some much needed relief from your pain
for quite awhile. Keep us posted.
Falacia
At Mon, 27 Feb 2006, Dawn wrote:
>
>I just found this forum. This is hard for me to explain and I want to
>start from the begining as much as I can for other women that might be
>new to this horrible diasease!Sorry this might be long. I dont know
>where to start and just want to give you all a "short" recap of how I
>finally got diagnosed. I do realize from reading the messages here I
>don’t need to Explain pain to you all. But I just want to let you know
>how this all started with me so I know that maybe someone can relate to
>me because everyone I know have mad me feel like awine "ass" sorry for
>the term. But this comes from allot of frustration! (You know) Any
>how...I Had my post-op visit from a lap on Thursday 2/23/06. I had the
>lap due to chronic pain that I Have had for the past couple years. And
>I finally found a doctor to listen after many ER and OBGYN visits!!! And
>many BS reasons.The pain was so bad I couldn’t do much of any thing with
>out it getting worse. The past few months I couldn’t sleep I was up in
>the middle of the Night sometimes two or three times with pain so bad I
>could not sit or stand nothing to make it go away. The only thing to
>relieve it for a little bit was a very hot bath. I have had Allot of
>ovarian cyst so I thought at first this was it. But the pain from that
>only last a Few days. This pain was now there every day. Sometimes so
>bad I didn’t want to move. When my new OB first tried to diagnose me
>and sent me for an ultrasound the results where an ovarian cyst and
>thicking of the uturis lining more than 1.5 cm I guess normal is .5cm.
>She discussed uterine cancer with me. I was so scared about that. The
>time from that talk to Schedule lap surgery and biopsy of the cyst and
>uterus was about three weeks. Nothing like waiting...... After surgery
>she told my husband I had endo and that she had to cauterize Allot of
>areas and remove my right ovary due to it was deformed and I had scar
>tissue so bad it was attached to my uterus at three different places not
>just at the fallopian tube. And that she could not do the spots on my
>urether and bladder and liver because it could damage the organs. This
>didn’t worry him much because he thought o.k. it's not cancer it's a
>women Thing and they took care of it. It didn’t bother me much either
>when I come too. And I went for that apt. on 2/23 she said you have
>endo and explained very little to me. I was so Scared about the cancer
>and wanting my biopsy results when she said my biopsy’s came back Fine I
>was so relieved I didn't have a cancer or a disease I didn’t ask any
>questions about the endo. She said she would put me on Lupron for 6
>months and see from there how I did. She didn’t explain anything else.
>I thought it was something women go through. But I’m not nieve as soon
>as it set in that it wasn’t cancer o.k be happy but you need to find out
>what it really is. I was almost devastated when I read what it really
>was. Dam it there is something wrong and I’m not going to be fine or
>o.k!!~!! Now I will go for a second opinion. Now I know that I don’t
>have cancer but it is in deed a disease!!! I need to learn more. Dam
>why didn’t she tell me more!!!!
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