ENDO Messages for February, 2006: Re: centley diagnosed with endo-My story

Re: centley diagnosed with endo-My story_Help Please

From: lisa (http://anonymous@obgyn.net)
Mon Feb 27 10:20:21 2006

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At Mon, 27 Feb 2006, Crystal wrote: >
>At Mon, 27 Feb 2006, Dawn wrote:
>>
>>I just found this forum. This is hard for me to explain and I want to
>>start from the begining as much as I can for other women that might be
>>new to this horrible diasease!Sorry this might be long. I dont know
>>where to start and just want to give you all a "short" recap of how I
>>finally got diagnosed. I do realize from reading the messages here I
>>don’t need to Explain pain to you all. But I just want to let you know
>>how this all started with me so I know that maybe someone can relate to
>>me because everyone I know have mad me feel like awine "ass" sorry for
>>the term. But this comes from allot of frustration! (You know) Any
>>how...I Had my post-op visit from a lap on Thursday 2/23/06. I had the
>>lap due to chronic pain that I Have had for the past couple years. And
>>I finally found a doctor to listen after many ER and OBGYN visits!!! And
>>many BS reasons.The pain was so bad I couldn’t do much of any thing with
>>out it getting worse. The past few months I couldn’t sleep I was up in
>>the middle of the Night sometimes two or three times with pain so bad I
>>could not sit or stand nothing to make it go away. The only thing to
>>relieve it for a little bit was a very hot bath. I have had Allot of
>>ovarian cyst so I thought at first this was it. But the pain from that
>>only last a Few days. This pain was now there every day. Sometimes so
>>bad I didn’t want to move. When my new OB first tried to diagnose me
>>and sent me for an ultrasound the results where an ovarian cyst and
>>thicking of the uturis lining more than 1.5 cm I guess normal is .5cm.
>>She discussed uterine cancer with me. I was so scared about that. The
>>time from that talk to Schedule lap surgery and biopsy of the cyst and
>>uterus was about three weeks. Nothing like waiting...... After surgery
>>she told my husband I had endo and that she had to cauterize Allot of
>>areas and remove my right ovary due to it was deformed and I had scar
>>tissue so bad it was attached to my uterus at three different places not
>>just at the fallopian tube. And that she could not do the spots on my
>>urether and bladder and liver because it could damage the organs. This
>>didn’t worry him much because he thought o.k. it's not cancer it's a
>>women Thing and they took care of it. It didn’t bother me much either
>>when I come too. And I went for that apt. on 2/23 she said you have
>>endo and explained very little to me. I was so Scared about the cancer
>>and wanting my biopsy results when she said my biopsy’s came back Fine I
>>was so relieved I didn't have a cancer or a disease I didn’t ask any
>>questions about the endo. She said she would put me on Lupron for 6
>>months and see from there how I did. She didn’t explain anything else.
>>I thought it was something women go through. But I’m not nieve as soon
>>as it set in that it wasn’t cancer o.k be happy but you need to find out
>>what it really is. I was almost devastated when I read what it really
>>was. Dam it there is something wrong and I’m not going to be fine or
>>o.k!!~!! Now I will go for a second opinion. Now I know that I don’t
>>have cancer but it is in deed a disease!!! I need to learn more. Dam
>>why didn’t she tell me more!!!!
>
>Hey sweetie, sorry about the way you feel. I'm sort of new at this to.
>I just had my laparoscopy, and was diagnosed in January. I don't have a
>lot of info to give you on endo, but there are a lot of web sites you
>can go to to find out more info. There are also alot of girls here, who
>can give you some advice. A group like this, where you can express, how
>you feel, and ask quiestions, is the most hepful. I am still trying to
>figure out how to manage my pain, so i don't want to give you any advice
>on that, until I figure out something that works. All I can say, is
>that a lot of people think that pilates, or yoga, and your diet can have
>an effect on your pain. But, I haven't tried any of those YET. Any
>way, this probably didn't help you much, and if not i'm sorry, but i
>wish you luck, and hope that you can find something to help alleviate
>your pain. Any time you need to talk, i'm here.
>Crystal

--
hey i cnt say i know how u feel cos everybody is different like u the hospital didnt tell me alot abt it i went on to the net and i was shocked to find out so much.it hard for any one to know how we feel its not an easy thing to explaine the put me on the pill didnt work than provera and that made me very depressed so i tru them in the bin.it hard to do every dayto day things even looking aftre my son all i want to do is sleep i cant work it just drians me of all my nrg

Next message: Sudsey: "Re: bad couple of weeks"
Previous message: anonymous: "Re: Gall Bladder Trouble?"
In reply to: Crystal: "Re: centley diagnosed with endo-My story_Help Please"
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