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Re: If you are new to endo - research, research, researchFrom: angela (anonymous@obgyn.net)Mon Feb 27 04:12:06 2006
At Mon, 27 Feb 2006, Jenny wrote: > >To anyone who is new to being diagnosed or suspecting that she has it: >learn as much as you can. It helps you feel more empowered. Sharing >what you learn with someone who is also going through it helps, too. > >I remember when I started really trying to learn about endo. After 10 >minutes of research, I would start to cry every time, uncontrollably. It >seems very depressing at first. You are in a lot of pain, you want to >learn and before too long you realize that it looks very grim for us. >There is no known cure, it is a progressive disease, and some of these >women are suffering tremendously. > >I actually didn't like this forum when I first came to it. I was >overwhelmed with the issues of the disease, some that may or may not be >issues for me now, and some that may affect me someday. But something >happened to me and I stopped crying after looking at this forum and >reading endo books. It's like they say, you have to grieve the loss of >your healthy, normal body. You go through the different stages of grief >and I believe I am finally at the acceptance stage. > >Please stay connected. If you are in pain and/or infertile, keep >talking. If you feel better, tells us what works! > >I thank God for this forum. I can't imagine how it was for someone in >the 1950's to go through this and imagining that it's in her head. > >~ Jenny
-- i am new to the site and my endo is no where near as bad as others i dont know a lot about it but read somewhere that eating meat and dairy products doubles the endos rate of growth , u may know this but i just thought i mention it. my problem is im 32 years old had endo pelvic for about 7 years. had 2 miscarages, each time i gather the baby is a slow grower as its about 8 weeks big when i lose it at 12 weeks . each time i seem to puff up like a gold fish , i dont really put on any weight but i look swollen. the hospital said loads of people miscarry and it may not be to do with my endo and they wont investigate till i lost at least 4. not trying now for about another 2 years but im worried how long i have left to conceive, my doctor said im a ticking time bomb,do u know many people that conceive after 32 and up to what age please. i cant take the pill as my doctor said due to continuing migranes i may have a stoke if i keep on taking it cause i been on it for 15 years. but my specaislist said the tablets he could give me are like hrt and the side effects are no good as im so young but he did tell me that 5 years ago.they said i have pelvic endo i dont want periods as they hurt and keep me off work, so i dont know what to do next. i put on 2 stone in weight since getting endo but i dont know if thats any thing to do with it. will the tablets the hospital give me if i ask for some put more weight on me, are there more than one tablet selection, what are the best ones to take , what are the side effects.can they tell with a scan if endo is in my bowel i think it may be but dont want to have another op if its not that bad. what happens if i ignore it which is what i have been doing, will i cause my self more damage. does removing it really work and how long for. any advice i would be greatful thanks angela t the spelling angela
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