|
Re: overwhelmed with endo....
From: Alyson (anonymous@obgyn.net)
Fri Feb 17 12:48:02 2006
HI Ladies,
Just wanted to mention that my pain did not stop after my first lap
either. I didn't find out until afterward that cauterizing the endo is
basically pointless. I spent about eight months with an
acupuncturist/herbalist after that lap. I was really feeling alot
better and had most of the pain under control. Unfortunately the
treatment can be expensive and I stopped going for financial reasons. I
really think it is a great option for pain management. Its just
important to understand that it won't stop or cure the endo.
On another note, Sarah, I don't know how you feel about this but I
finally broke down and made an appointment with a counselor. I go in a
week. I am struggling with the same confusion regarding treatment,
fertility, etc. (I know we all are). I just had a second lap with
laser ablation in October (a year after the first) and was convinced
that it would bring me a couple of years of relief. Turned out to be
more like a couple of months. I'm really hoping talking to someone will
give me the tools to deal with all of this.
Good luck,
Alyson
At Fri, 17 Feb 2006, Jenny wrote:
>
>Sarah~
>I also had a lap with no pain relief. My doctor assued me that I should
>not be in any pain and she also wanted to put me on Lupron. If that
>didn't work she was going to send me off to a pain specialist because
>she had no idea what else to do.
>
>But this and other forums made me decide that Lupron was not right for
>me at this time. I sought out another opinion from a doctor who wanted
>to put me on the IUD called Minera which has worked for SOME women in
>studies and I am finally feeling better after a year of daily pelvic
>pain.
>
>Good luck to you and just listen to your gut. Endo sucks at any age,
>but at 23 - my heart really goes out to you.
>
>~Jenny
>
>At Fri, 17 Feb 2006, Sarah wrote:
>>
>>i found this site and thought it would be a good place to get support
>>and encouragement from those who understand what i am going through.
>>this disease can make you feel so alone. i am sorry that there are so
>>many of us out there. i am 23 and was diagnosed with endometriosis in
>>november. i am so overwhelmed at the thought of dealing with this
>>disease. my pain started in september. i have a close friend with endo
>>so i went to the doctor right away. i had a lap in the beginning of
>>november. the doctor found spots on my uterus. one deep spot on the
>>left and some more superfacial ones on the right. the surgery did not
>>seem to have much of an affect. i am still in pain daily. my pain is
>>not debilitating, but tiring and a lot to deal with none the less. i am
>>not sure what to do. i have a doctor's appointment on tuesday. i do
>>not want to take the lupron shots. i don't think i want to deal with
>>possible side effects. has anyone had luck with natural treatment? i
>>have heard of success with herbs and accupuncture. anyone know any good
>>doctors in the denver area? unfortunately, my insurance won't cover it.
>>when i think about dealing with this disease for the rest of my life i
>>am overwhelmed. i am 23 this isn't supposed to be happening to me. i
>>just wish i could get relief from the constant worry instead of the
>>daily reminder my body sends me as i ache when i get out of bed. i want
>>to have a baby someday. that possibility is a long way off so i sit and
>>wait. thoughts of infertility struggles are enough to make me want to
>>pull the covers up over my head. thanks for reading... i welcome any
>>words of advice or encouragement. sarah
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)