ENDO Messages for January, 2006: Re: Help - Who Do I Speak to Next????

Re: Help - Who Do I Speak to Next????

From: Tara (anonymous@obgyn.net)
Tue Jan 31 20:46:08 2006

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In reply to: Siân: "Help - Who Do I Speak to Next????"

You sound like you are in a lot of left sided pain, just like me. I have had lesions on my bowel and they are on nerve beds (which I believe) are heading to my left leg. I have had numbness in my entire left leg during bowel movements and extreme bone pain associated with this. Your gyno saying that you would be 100% fine after your lap is an idiot. (Sorry for my bluntness, but we know that there is a very good chance of the disease being somewhere that is missed during a lap or recurring pain in the future. He/she seemed a bit over-confident to me:) We just hope the laps get that really annoying horrible pain causing lesion in there somewhere. Painkillers will not take the pain away completely without other treatment, in my experience. After your trial of Zoladex I would say its time for something else. It sounds like you have been to two gyno's, a male that sent you to a female, but you need to hopefully find an endo specialist. GP's do not generally know anything about endo in my experience and will just give you some pain medicine to get by. I'm not in the UK, but maybe someone in the forum can direct you to an MD specialist that can help you. Painful sex sounds like a cul-de-sac lesion, or something they haven't diagnosed yet in your uterus or bladder. I'm not a doctor, but I have the same thing and that's where some endo was found. I wish you luck. Let us know how things are going for you. If nothing else, I'm here for you.

At Tue, 31 Jan 2006, Siân wrote: >
>Hi
>
>I had my 2nd laparoscopy on the 8th December, that was following 6
>months of Zoladex which started in June. My first lap was in March.
>
>I was told by my gynaecologist that I would be 100% fine and not have
>endo or any symptoms following the Zoladex injections and the 2nd lap.
>
>I went back onto the pill a week or so after the 2nd laparoscopy which
>was around mid December. All was fine until new years day when I
>started bleeding and getting low abdominal pains.
>
>I saw my gynaecologist a week or so later who told me to grin and bear
>it, both should calm down and believed it was down to the pill getting
>itself sorted in my system. Also, I hadn't really had a normal period
>after the Zoladex had finished.
>
>A week after that I was still bleeding so again, after speaking to my
>gynaecologist and on her recommendations, I stopped taking the pill. It
>was fairly heavy bleeding for 23 days.
>
>I have now stopped bleeding but am still in quite alot of pain, almost
>constantly - it is around the area of my left ovary and sometimes on the
>right hand side. I get a stabbing pain in those area's but sometimes
>get an aching across the lower abdomen.
>
>All my GP is doing is giving me painkillers which don't generally take
>the pain away and I feel like I am being passed between pillar to post.
>My male GP told me to visit the female GP at the practice as 'she would
>know more about it'.
>
>The pain is getting so bad that I am unable to do the things that I want
>to do and sex can be quite painful aswell.
>
>I feel cheated coz my gynaecologist seemed so adamant that I would be ok
>after the treatment and 2nd lap and when I have questioned her on it as
>I am not, it feels like she has washed her hands of me.
>
>I just don't know what to do next or who to speak to next. The pain is
>actually worse than is was a year ago before I started.
>
>Sorry that this is so long but I woudl appreciate your help and advises.
>
>Thank you
>
>Siân.

Next message: Tara: "Re: Yippee......but can I whine at you guys some more??!!"
Previous message: Kristina: "Re: my history, please read need input"
In reply to: Siân: "Help - Who Do I Speak to Next????"

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