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Re: cently diagnosed...scared
From: CCANNA (anonymous@obgyn.net)
Mon Jan 30 07:31:37 2006
Thanks for the hopeful scenario! I am not quite ready for children yet.
Hopefully, I will be married within the next 2 years and then we will
start trying. Now I just have to find the right birth control. Thanks
again and good luck to you!! ccanna
At Sat, 28 Jan 2006, Alexandra wrote:
>
>At 18 I was diagnosed with endo. At 22 Again, stage 3. Was advised to
>get pregnant right away or undergo oral contraceptives. I wasn´t near
>thinking about marriage with my boyfriend. Went with the OC continously
>for about 4 years. Then got married and after third laparoscopy endo
>was mild. Became pregnant! (With a little hormone help) My daughter is
>6 now. The Oral contraceptives definitively helped, and anyway I wasn´t
>ready to have a baby before. So It can happen. My endo is back, (stage
>3) I´m 36 and trying to get pregnant again. Verry hopefull.
>Good luck!
>
>--
>Alexandra
>
>At Fri, 27 Jan 2006, Tara wrote:
>>
>>Wow, it sounds like you have a bad case and definitely need to start
>>some kind of treatment for the pain etc. As for continuous birth
>>control pills, there is a chart on this website...
>>http://www.wdxcyber.com/ncontr13.htm that shows all of the pills and
>>then has a chart at the bottom according to what symptoms you experience
>>as to which pill to maybe switch to. Each person is different and acts
>>differently to each type of BCP. Your doctor will probably start with
>>one of the pills at the top of the chart with a low dose of estrogen and
>>a steady dose of hormones. Some of the other pills, like Tri-phasil, or
>>Ortho-trycyclen, have three different hormone doses in a pack and aren't
>>as good for continuous use. Some people have done a continuous Nuva
>>Ring also. I do not recommend this due to several of us getting high
>>blood pressure and serious problems with this method.
>>
>>My mom had horrible stage IV endo with a grapefruit ovary and scar
>>tissue. I'm here today writing you to prove that you can still have
>>hope and kids with this kind of problem:) If its meant to be it will
>>happen. Good luck to you!
>>
>>At Fri, 27 Jan 2006, CCANNA wrote:
>>>
>>>First of all, I would like to say that I am grateful to find this site.
>>>I would like to also describe my situation...I'm truly sorry if this
>>>gets to long...please keep reading. I had pain and discomfort for
>>>approx. 2-3 months before my gynocologist discovered a mass on my left
>>>ovary, orignally believed to be a dermoid. However, laproscopic surgery
>>>proved it was an endometrioma. I had my left ovary removed due to the
>>>cyst and adhesions. The entire area was the size of a grapefruit and my
>>>ovary was fused to my bowel. Anywho, after surgery my dr. told my
>>>family and boyfriend (husband soon) that I should probably think about
>>>having children sooner rather than later. At my post op, I was
>>>extremely disappointed because I was told that I PROBABLY had the
>>>beginning stages of endometriosis. Ok....that didn't tell me much and
>>>it scared me to death. She gave me some options: lupron, birth control,
>>>or get pregnant. I decided on the birth control, Yasmin to be exact but
>>>after the first two pills I got heartburn so darn bad that I stopped
>>>taking them...not sure if that was caused by the pills but I hadn't
>>>changed my diet and this heart burn, or chest pain, was horrible. I for
>>>the next few months all I could think about was "probably
>>>endometriosis". Then I started thinking back...my boyfriend and I had
>>>been dating for 3 years, about a year and a half ago we stopped using
>>>any type of birth control...not WANTING to get pregnant, just being
>>>irresponsible. We basically considered ourselves LUCKY that we hadn't
>>>had any ACCIDENTS (I know that is a horrible way to put it), but now
>>>that this was happining, I was wondering if it wasn't luck, but the
>>>endometriosis. In the mean time, I started feeling pain on my right
>>>side. Oh great. I decided to consult a different dr. One who I had
>>>heard excellent things about. My appt this last Tuesday and, boy, did I
>>>find out ALOT more. After hearing my story, especially after hearing
>>>about the endometrioma, he told me I definitely had endometriosis and,
>>>as he put it, a decent case of it (stage II or III, this is his guess
>>>w/out doing another lap). He told me I probably have it in other places
>>>besides the ovaries, hence my lower back pain and painful intercourse.
>>>He also suggested hormone suppression for pain control. I am going to
>>>try the birth control again...my first question...What type of b.c. do
>>>any of you recommend? The dr. also gave me helpful info about what to
>>>do when we actually try to conceive. He was awesome.
>>>
>>>I just wanted to share my story with you all. I am still very scared
>>>about knowing I have endometriosis, especially since I am only 24 and
>>>want so desperately to have children. Like so many of you all out
>>>there, I am also so frusterated with those out there that don't
>>>understand that we have a...disease. We have pain. We have something
>>>"wrong" inside of us. We have to live with it! I am sorry this is so
>>>long...congrats for making it to the end of my story! I am welcoming any
>>>comments, suggestions, anything anyone wants to post. Thanks again,
>>>CCANNA
>
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