ENDO Messages for January, 2006: Re: Please read, I am almost desperate.

Re: Please read, I am almost desperate.

From: Sami (anonymous@obgyn.net)
Mon Jan 30 05:42:15 2006

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At Mon, 30 Jan 2006, mere wrote: >
>This may be long, but I really need some advice.
>
>I am in the military and currently in Iraq.
>
>Earlier this month I started having really bad cramping, and pressure on
>my abdomen plus a nasty discharge. It felt like Icy-Hot. On the
>outside my skin was buring but inside it felt icy. I went to the medic
>and I was sent to see an OBGYN but none were available so I saw a nurse
>practioner.
>
>A ultra-sound showed several cysts in my left ovary and one large one in
>my right ovary. Also, my right ovary was larger than normal. My last
>pap came back abnormal, but the only licensed person to do the colpo had
>left the day before I came to the clinic so I was told to come back in a
>month. They found a bacteria and gave me a shot of antibiotics-cleared
>up the discharge within a day. They said the cysts could be painful and
>I had endometritis(not endometriosis). Take IB profen(the military's
>cure all) and come back in 8 weeks for a follow-up. They barely gave me
>20 minutes of their time and treated me terribly.
>
>I couldn't wait 8 weeks, the pain got worse. My dr. here suggested
>endometriosis, but since I had an IUD in there was really nothing to do.
>I called my mother and she said that she has endo and had a lot of
>complications with it when she was in her early 20's.
>
>I have also had pain in my hips, lower back, and pain radiating down the
>front of my legs for over three years. I wasn't in any kind of
>accident, it just started one day. I have had MRI, bone scans, and
>X-rays done on them several times and they found no stress fractures or
>slipped disks. Some days I can barely walk, but I am expected to run
>daily. Most nights I cry from the pain and not being able to sleep.
>
>I tried a different medic, and I found someone who will listen and take
>the time to care. He wanted to rule out IBS and slipped disk, but it
>came back to endometriosis. He sent me to a clinic (which requires a
>helicopter ride over a combat zone and days of waiting around) where the
>OBGYN talked to me and did an exam for 15 minutes. He said he was too
>busy to read the 5 pages the kind medic had written and didn't have time
>to perform all the labs that the medic had asked for. He removed my IUD
>because it was upside down, looked and found no cysts in my ovaries and
>prescribed antidepressants because "I have a low tollerance for pain."
>He mentioned endo, and a lapro in passing but nothing more. He said it
>was up to my medic how this would impact my ability to do my job and
>continue the deployment- but I was sent to him to make that decision!! I
>just keep getting passed over because I'm not dying or bleeding. I
>understand that people here are injured, but I'm in pain too. Then I
>was referred to Psych-because "this may all be in my head."
>
>I am no longer able to go to the medic who helped me because they are in
>a different branch than myself (army vs. navy).
>
>I know I'm not crazy. I am in pain every day. I have done research and
>read your threads. I have theses symtoms- so did my mother. When she
>had her lapro they said it looked like someone poured glue inside, it
>was a mess.
>
>What can I do? Is this something that needs to be diganoised and treated
>in the US, or do I have to continue to be in pain and suffer in Iraq? I
>am married and worried how this will effect my abiltiy to have children.

Hi there, first i want to say that i admire you for being in an active combat zone whilst in so much pain. It would seem that you are a likely candidate for a Laporoscopy. Not only as u are in significant pain, but ALSO that you MUM has Endo & is DIAGNOSED. U have a family history of this illness, it is NOT JUST in your head.

By any chance was ur GYNO a man? i don't mean to sound aggressive, but many men do not understand or comprehend the level of pain relating to female reproductive organs let alone Endo.

Is it possible for you to be prescribed an NSAID? it stands for Non Steroid Anti Inflamatory Drug? this can help you to cope in the meantime but I feel that you would benefit considerably from Investigative Surgey.

I do not know if u are able to have this whilst on active duty, I understand that the onus is on the physically wounded.

You must perservere, noone knows ur body like u. please see another Medic in ur division, is it possible that u may get a medical discharge? then u can have the surgery, find out what is going on & then if u want go back on duty.

Heat on your back helps, and your tummy. Even though it hurts stretching your legs and physically 'putting them up the wall' can ease the pressure.

I am 27 and have had 5 admissions to hospital for Laporoscopy/Hysteroscopy surgery for severs endometriosis, i was diagnosed at 23 and understand it is awfully painful and debititating illness.

please let me know how you go, i always check in and am happy to talk via email. Be strong, you are a courageous woman who knows what chronic pain feels like, it willl not be like it is forever, take care and best wishes from Australia Sami x

Next message: anonymous@obgyn.net: "Re: Cysts and Endo"
Previous message: Sumarah: "Re: Post laparoscoy question"
In reply to: mere: "Please read, I am almost desperate."
Next in thread: Steph: "Re: Please read, I am almost desperate.(For Mere)"

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