Re: cently diagnosed...scared
From: Alexandra (anonymous@obgyn.net)
Sat Jan 28 17:58:16 2006
At 18 I was diagnosed with endo. At 22 Again, stage 3. Was advised to
get pregnant right away or undergo oral contraceptives. I wasn´t near
thinking about marriage with my boyfriend. Went with the OC continously
for about 4 years. Then got married and after third laparoscopy endo
was mild. Became pregnant! (With a little hormone help) My daughter is
6 now. The Oral contraceptives definitively helped, and anyway I wasn´t
ready to have a baby before. So It can happen. My endo is back, (stage
3) I´m 36 and trying to get pregnant again. Verry hopefull.
Good luck!
--
Alexandra
At Fri, 27 Jan 2006, Tara wrote:
>
>Wow, it sounds like you have a bad case and definitely need to start
>some kind of treatment for the pain etc. As for continuous birth
>control pills, there is a chart on this website...
>http://www.wdxcyber.com/ncontr13.htm that shows all of the pills and
>then has a chart at the bottom according to what symptoms you experience
>as to which pill to maybe switch to. Each person is different and acts
>differently to each type of BCP. Your doctor will probably start with
>one of the pills at the top of the chart with a low dose of estrogen and
>a steady dose of hormones. Some of the other pills, like Tri-phasil, or
>Ortho-trycyclen, have three different hormone doses in a pack and aren't
>as good for continuous use. Some people have done a continuous Nuva
>Ring also. I do not recommend this due to several of us getting high
>blood pressure and serious problems with this method.
>
>My mom had horrible stage IV endo with a grapefruit ovary and scar
>tissue. I'm here today writing you to prove that you can still have
>hope and kids with this kind of problem:) If its meant to be it will
>happen. Good luck to you!
>
>At Fri, 27 Jan 2006, CCANNA wrote:
>>
>>First of all, I would like to say that I am grateful to find this site.
>>I would like to also describe my situation...I'm truly sorry if this
>>gets to long...please keep reading. I had pain and discomfort for
>>approx. 2-3 months before my gynocologist discovered a mass on my left
>>ovary, orignally believed to be a dermoid. However, laproscopic surgery
>>proved it was an endometrioma. I had my left ovary removed due to the
>>cyst and adhesions. The entire area was the size of a grapefruit and my
>>ovary was fused to my bowel. Anywho, after surgery my dr. told my
>>family and boyfriend (husband soon) that I should probably think about
>>having children sooner rather than later. At my post op, I was
>>extremely disappointed because I was told that I PROBABLY had the
>>beginning stages of endometriosis. Ok....that didn't tell me much and
>>it scared me to death. She gave me some options: lupron, birth control,
>>or get pregnant. I decided on the birth control, Yasmin to be exact but
>>after the first two pills I got heartburn so darn bad that I stopped
>>taking them...not sure if that was caused by the pills but I hadn't
>>changed my diet and this heart burn, or chest pain, was horrible. I for
>>the next few months all I could think about was "probably
>>endometriosis". Then I started thinking back...my boyfriend and I had
>>been dating for 3 years, about a year and a half ago we stopped using
>>any type of birth control...not WANTING to get pregnant, just being
>>irresponsible. We basically considered ourselves LUCKY that we hadn't
>>had any ACCIDENTS (I know that is a horrible way to put it), but now
>>that this was happining, I was wondering if it wasn't luck, but the
>>endometriosis. In the mean time, I started feeling pain on my right
>>side. Oh great. I decided to consult a different dr. One who I had
>>heard excellent things about. My appt this last Tuesday and, boy, did I
>>find out ALOT more. After hearing my story, especially after hearing
>>about the endometrioma, he told me I definitely had endometriosis and,
>>as he put it, a decent case of it (stage II or III, this is his guess
>>w/out doing another lap). He told me I probably have it in other places
>>besides the ovaries, hence my lower back pain and painful intercourse.
>>He also suggested hormone suppression for pain control. I am going to
>>try the birth control again...my first question...What type of b.c. do
>>any of you recommend? The dr. also gave me helpful info about what to
>>do when we actually try to conceive. He was awesome.
>>
>>I just wanted to share my story with you all. I am still very scared
>>about knowing I have endometriosis, especially since I am only 24 and
>>want so desperately to have children. Like so many of you all out
>>there, I am also so frusterated with those out there that don't
>>understand that we have a...disease. We have pain. We have something
>>"wrong" inside of us. We have to live with it! I am sorry this is so
>>long...congrats for making it to the end of my story! I am welcoming any
>>comments, suggestions, anything anyone wants to post. Thanks again,
>>CCANNA
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