Re: Lupron but still in pain...anyone else?
From: Alexis (anonymous@obgyn.net)
Thu Jan 26 09:57:52 2006
Thank you so much for your reply.
Endo was not a first choice treatment for me.
I have had my laps, and tried BCPs (which really make me
crazy...definitely not a nice person to be around at all). I had been
pain free, but now I have pain. I am handling the side affects okay. I
try to work out 3-5 times per week but if I'm in pain I can't. I guess
I need to start paying more attention to my diet.
Thanks again,
--
Alexis.
At Thu, 26 Jan 2006, anonymous@obgyn.net wrote:
>
>I have not been on Lupron, but have done the continous BP for 3 month
>cycles (which did not work), then went on depo provera and have been on
>it since for over two years. At first I noticed a drastic reduction in
>pain, but over time the frequency has returned, just not at such a high
>level of pain. When I went back to my gyn (who is very informed,
>thankfully), he said pretty much all present day treatments for endo,
>even Lupron, will never fully eliminate the pain of endo. It's
>basically a chronic-pain illness and that treatments are designed to
>control the return of the adhesions, or to prevent the process that
>fuels endo. Unfortunately, eliminating the pain totally is not a
>possibility now. I wouldn't worry that there is something else wrong...
>I had the same fears when after seeing signs of improvement on depo, I
>began to feel frequent pain again. That's why i headed back to the doc,
>I thought there has to be something else to have all these symptoms
>still (pain, bowel problems, etc). But, unfortunately, that's just the
>nature of endo. I had a colonoscopy, upper and lower gi, cat scans,
>xrays, you name it - in the process of finding out I had endo. And all
>tests came back normal. I pretty much, through process of elimination
>in learning I had endo, realize endo seems to be the source of all my
>pains and issues in that area of my body!!
>
>I do have to note - my doc was very careful in explaining Lupron and
>discouraged it as a first time treatment. I had the lapo first and
>tried the 3 month continuous cycle with bp. When that didn't work, he
>sugggested depo and said if that doesn't work, then go to lupron when
>all else fails. Said it's just one of those last resort treatments
>because of the many side effects it can have. Thankfully the depo has
>sustained me!
>
>General advice - diet and exercise does a world of good...reduce fats
>(lean meats - not fried) and sugars, increase omega fatty acids, more
>fresh fruits and veggies. and excercise at least 3 times a week. I
>have my stints where i don't exercise and it seems i have more pain
>during those times than when I'm in shape. Could be a mental thing -
>but either way I feel better and have less pain for whatever reason when
>I'm active.
>Vitamins: multi-vitamin, b-complex, calcium-magnesium, fish oil (or some
>other vitamin to provide omega 3 fatty acids).
>
>At Thu, 26 Jan 2006, Dena wrote:
>>
>>Hi Alexis,
>>
>>I know a lot of women have great luck with Lupron, but some have none at
>>all, or even worse pain and horrible debilitating side effects like
>>myself. Lupron was an evil drug for me and I wouldn't wish what
>>happened to me upon my worst enemy (if I had one :)
>>
>>If the pain you're experiencing is like your endo pain, it probably is
>>your endo pain. Although, if you tell your doctor, most likely he or
>>she wouldn't believe that it's your endo pain. Most doctors think
>>Lupron works the same for every woman without exception.
>>
>>Good luck and I hope you have better days soon!
>>
>>At Thu, 26 Jan 2006, Alexis wrote:
>>>
>>>Hi ladies,
>>>
>>>I have been on Lupron for almost 3 months now. I'm handling the side
>>>affects the best I can. Over the past few days I have been experiencing
>>>pain across my lower abdomen, very similar to my endo pain.
>>>
>>>I had been pain free for the last while until now. I am worried that
>>>there might be something else wrong with me.
>>>
>>>Has anybody experienced pain while this far into their Lupron treatment?
>>>
>>>Please advice...I am really, really, worried.
>>>
>>>Thanks,
>>>
>>>--
>>>Alexis.
>>>
>>--
>>Dena
>>
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