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Re: All over itching--anyone? BREN
From: Tara (anonymous@obgyn.net)
Thu Jan 19 19:37:48 2006
Good luck with your hysto Kristen. I'm going for a laparocopy on the
same day 2/13 and I'll be thinking of you! Good luck being strong up
until that date also. Boy, I guess we'll have somthing red to wear on
Valentine's Day... incisions!! :)stay strong!!
At Thu, 19 Jan 2006, Kristen wrote:
>
>Wow sounds all too familiar. In Oct 05 i had itchy rash on my buttocks
>and legs, Dr. said it was Shingles! I have endo 4 after a lap and one
>ovary removal last year. Said it was the worst too. Now my other ovary
>has huge choc cyst on it so i am having a hysto on 2-13. I hope he can
>remove the endo. Today i have the worst pain-feel like i have the flu
>plus constipated, my pelic area is soo swollen and i feel like the other
>ovary is going to burst! I hope i make it to the surgery. Please let
>us/me know how you feel after your surgery to date. We have to stick
>together! Kristen
>
>At Thu, 19 Jan 2006, Alyson wrote:
>>
>>Bren,
>>Its interesting that you brought this up again. Do you mind me asking
>>what your itchy spots looked like? I went back to my allergist this week
>>because my rash is back...and I finally got the guts up to tell him that
>>I think it is related to my endometriosis. My dermatologist said and
>>did all the same things yours did. I was pleasantly surprised with the
>>allergists reception to my theory. He is sending me for blood work and
>>doing some more investigative tests. I was just curious since you got
>>the same response from your dermatologist whether or not our bumps look
>>the same! ;-) (Mine are individual little round spots...almost like
>>little pimples, but sometimes there will be a "patch" of them where they
>>are all right next to each other, and man they itch like crazy!)
>>Alyson
>>
>>At Thu, 19 Jan 2006, Bren wrote:
>>>
>>>At Fri, 6 Jan 2006, Andrea wrote:
>>>>
>>>>Thank you for your responses! Feel like I have been going crazy itching
>>>>for an unknown reason! I do have a rash that appears when my pain
>>>>starts, but it isn't a bacterial, fungal, or any other kind of textbook
>>>>rash. It is usually on my waist, hips, and legs and looks like raised
>>>>welts or hives. they go away with steroid cream, but come back each
>>>>month. Dr's not sure why so next stop Dermatologist.
>>>>
>>>>At Fri, 6 Jan 2006, Jessica wrote:
>>>>>
>>>>>At Fri, 6 Jan 2006, Alyson wrote:
>>>>>>
>>>>>>Do you actually have a rash or just itchy skin? I have an unexplained
>>>>>>rash on the inside of my right arm, over my right hip bone, and near
>>>>>>both of my ankles. It flares up when my symptoms are bad. In fact it
>>>>>>hasn't flared up since my surgery 3 months ago and then I had a bad week
>>>>>>of pain last week and all of a sudden there it was again!! I've seen two
>>>>>>dermatologists, had it biopsied, used steroid creams to treat it...the
>>>>>>biopsies showed that it is an allergic reaction, but the allergist can't
>>>>>>figure out why it would consistently pop up in those areas every time
>>>>>>and not somewhere else...so as of now it is still a mystery!
>>>>>>Alyson
>>>>>>
>>>>>>At Thu, 5 Jan 2006, Andrea wrote:
>>>>>>>
>>>>>>>I am currently being evaluated for possible endo and am scheduled for a
>>>>>>>lap for a diagnosis. I am new to this forum and endometriosis. I was
>>>>>>>wondering if anyone else has experienced an all over itching feeling ,
>>>>>>>more extreme during period. The doctors have ruled out any external
>>>>>>>parasite (no one else in my house has symptoms and there is no rash
>>>>>>>consistent to scabies or other bugs). There seems to not be an obvious
>>>>>>>allergen , just unexplained puritus. The itching seems to come at the
>>>>>>>same time as my pelvic and urinary pain . May not be related to endo,
>>>>>>>but thank you in advance for your input. Best wishes to all!
>>>
>>>Andrea:
>>>When I read your post, I had to write. I am a 43 y.o. nurse. Never
>>>had children. Periods always regular with minimal discomfort to speak
>>>of. My story begins in August 2005. One day I suddenly had a few itchy
>>>spots on my upper abdomen. Looked like pimples but they itched. Within
>>>a week my entire abdomen was covered in these itchy spots. I thought,
>>>as a nurse that maybe I was exposed to some type of fungus at work.
>>>Bought some Lamisil cream. It relieved the itching and the abdomen
>>>slooooowly began to heal. But meanwhile, my back became covered as well
>>>as spots on my arms, legs, neck, chest, armpits, feet, scalp, face, ear
>>>lobes, even the palms of my hands itched and had those raised red spots.
>>>I was miserable. After I stopped treating my abdomen with the Lamisil
>>>cream because they went away, they returned within a week. I went to
>>>the dermatologist and he said I had a systemic allergic reaction. He
>>>said no to fungus, bacterial and wasn't sure what caused it. He gave me
>>>a steroid shot and said I would feel better within 2 days. Also he
>>>prescribed Triamcinolone Acetonide Ointment, 0.1% to be applied to all
>>>spots. I tell you what, he saved me. The spots started to fade within
>>>a couple of days. The ointment helped relieve itching as well. Part 2
>>>of my story now... in November I had a 9 day period. Very strange for
>>>me. December I had 2 week period! I went to the gynecologist. He
>>>examined me and said I was full of fibroids. Vaginal ultrasound showed
>>>my uterus was the size of a 4 month pregnancy. He also saw ovarian
>>>cysts on both ovaries. Part 3 of my story... Jan 10, 2006. Complete
>>>hysterectomy along with both ovaries and my tubes, as well. Everything
>>>gone. He explained that I had one of the worst cases he has ever seen
>>>of endometriosis. I had adhesions all over the place. My bladder was
>>>"stuck" onto my pelvis wall. A complete mess. He saw endometrial
>>>growths and got rid if it as best he could. He is not putting me on HRT
>>>because he wants to be sure the endometriosis dies out. Estrogen feeds
>>>those cells. He said it takes about 3 months without estrogen and we
>>>can evaluate any menopause symptoms I might get and decide what to do
>>>from there. I am convinced that the itchy rash that I had in
>>>August/Sept. was an allergic response from the endometriosis getting
>>>out of control. So I will try to avoid HRT as long as I can. I am 9
>>>days post op. Incidentally, I had to have 4 units of blood transfused
>>>due to the bleeding endo growths and such during my surgery. I am
>>>hanging in there. Pelvic swelling, some pelvic pain associated with
>>>body positioning, bowel pain plagues me. Hope I have shed some light
>>>for you.
>>>Bren
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