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Re: All over itching--anyone? BREN
From: Kristen (anonymous@obgyn.net)
Thu Jan 19 19:07:03 2006
Wow sounds all too familiar. In Oct 05 i had itchy rash on my buttocks
and legs, Dr. said it was Shingles! I have endo 4 after a lap and one
ovary removal last year. Said it was the worst too. Now my other ovary
has huge choc cyst on it so i am having a hysto on 2-13. I hope he can
remove the endo. Today i have the worst pain-feel like i have the flu
plus constipated, my pelic area is soo swollen and i feel like the other
ovary is going to burst! I hope i make it to the surgery. Please let
us/me know how you feel after your surgery to date. We have to stick
together! Kristen
At Thu, 19 Jan 2006, Alyson wrote:
>
>Bren,
>Its interesting that you brought this up again. Do you mind me asking
>what your itchy spots looked like? I went back to my allergist this week
>because my rash is back...and I finally got the guts up to tell him that
>I think it is related to my endometriosis. My dermatologist said and
>did all the same things yours did. I was pleasantly surprised with the
>allergists reception to my theory. He is sending me for blood work and
>doing some more investigative tests. I was just curious since you got
>the same response from your dermatologist whether or not our bumps look
>the same! ;-) (Mine are individual little round spots...almost like
>little pimples, but sometimes there will be a "patch" of them where they
>are all right next to each other, and man they itch like crazy!)
>Alyson
>
>At Thu, 19 Jan 2006, Bren wrote:
>>
>>At Fri, 6 Jan 2006, Andrea wrote:
>>>
>>>Thank you for your responses! Feel like I have been going crazy itching
>>>for an unknown reason! I do have a rash that appears when my pain
>>>starts, but it isn't a bacterial, fungal, or any other kind of textbook
>>>rash. It is usually on my waist, hips, and legs and looks like raised
>>>welts or hives. they go away with steroid cream, but come back each
>>>month. Dr's not sure why so next stop Dermatologist.
>>>
>>>At Fri, 6 Jan 2006, Jessica wrote:
>>>>
>>>>At Fri, 6 Jan 2006, Alyson wrote:
>>>>>
>>>>>Do you actually have a rash or just itchy skin? I have an unexplained
>>>>>rash on the inside of my right arm, over my right hip bone, and near
>>>>>both of my ankles. It flares up when my symptoms are bad. In fact it
>>>>>hasn't flared up since my surgery 3 months ago and then I had a bad week
>>>>>of pain last week and all of a sudden there it was again!! I've seen two
>>>>>dermatologists, had it biopsied, used steroid creams to treat it...the
>>>>>biopsies showed that it is an allergic reaction, but the allergist can't
>>>>>figure out why it would consistently pop up in those areas every time
>>>>>and not somewhere else...so as of now it is still a mystery!
>>>>>Alyson
>>>>>
>>>>>At Thu, 5 Jan 2006, Andrea wrote:
>>>>>>
>>>>>>I am currently being evaluated for possible endo and am scheduled for a
>>>>>>lap for a diagnosis. I am new to this forum and endometriosis. I was
>>>>>>wondering if anyone else has experienced an all over itching feeling ,
>>>>>>more extreme during period. The doctors have ruled out any external
>>>>>>parasite (no one else in my house has symptoms and there is no rash
>>>>>>consistent to scabies or other bugs). There seems to not be an obvious
>>>>>>allergen , just unexplained puritus. The itching seems to come at the
>>>>>>same time as my pelvic and urinary pain . May not be related to endo,
>>>>>>but thank you in advance for your input. Best wishes to all!
>>
>>Andrea:
>>When I read your post, I had to write. I am a 43 y.o. nurse. Never
>>had children. Periods always regular with minimal discomfort to speak
>>of. My story begins in August 2005. One day I suddenly had a few itchy
>>spots on my upper abdomen. Looked like pimples but they itched. Within
>>a week my entire abdomen was covered in these itchy spots. I thought,
>>as a nurse that maybe I was exposed to some type of fungus at work.
>>Bought some Lamisil cream. It relieved the itching and the abdomen
>>slooooowly began to heal. But meanwhile, my back became covered as well
>>as spots on my arms, legs, neck, chest, armpits, feet, scalp, face, ear
>>lobes, even the palms of my hands itched and had those raised red spots.
>>I was miserable. After I stopped treating my abdomen with the Lamisil
>>cream because they went away, they returned within a week. I went to
>>the dermatologist and he said I had a systemic allergic reaction. He
>>said no to fungus, bacterial and wasn't sure what caused it. He gave me
>>a steroid shot and said I would feel better within 2 days. Also he
>>prescribed Triamcinolone Acetonide Ointment, 0.1% to be applied to all
>>spots. I tell you what, he saved me. The spots started to fade within
>>a couple of days. The ointment helped relieve itching as well. Part 2
>>of my story now... in November I had a 9 day period. Very strange for
>>me. December I had 2 week period! I went to the gynecologist. He
>>examined me and said I was full of fibroids. Vaginal ultrasound showed
>>my uterus was the size of a 4 month pregnancy. He also saw ovarian
>>cysts on both ovaries. Part 3 of my story... Jan 10, 2006. Complete
>>hysterectomy along with both ovaries and my tubes, as well. Everything
>>gone. He explained that I had one of the worst cases he has ever seen
>>of endometriosis. I had adhesions all over the place. My bladder was
>>"stuck" onto my pelvis wall. A complete mess. He saw endometrial
>>growths and got rid if it as best he could. He is not putting me on HRT
>>because he wants to be sure the endometriosis dies out. Estrogen feeds
>>those cells. He said it takes about 3 months without estrogen and we
>>can evaluate any menopause symptoms I might get and decide what to do
>>from there. I am convinced that the itchy rash that I had in
>>August/Sept. was an allergic response from the endometriosis getting
>>out of control. So I will try to avoid HRT as long as I can. I am 9
>>days post op. Incidentally, I had to have 4 units of blood transfused
>>due to the bleeding endo growths and such during my surgery. I am
>>hanging in there. Pelvic swelling, some pelvic pain associated with
>>body positioning, bowel pain plagues me. Hope I have shed some light
>>for you.
>>Bren
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