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Re: All over itching--anyone?
From: Alyson (anonymous@obgyn.net)
Thu Jan 19 14:15:23 2006
Bren,
Its interesting that you brought this up again. Do you mind me asking
what your itchy spots looked like? I went back to my allergist this week
because my rash is back...and I finally got the guts up to tell him that
I think it is related to my endometriosis. My dermatologist said and
did all the same things yours did. I was pleasantly surprised with the
allergists reception to my theory. He is sending me for blood work and
doing some more investigative tests. I was just curious since you got
the same response from your dermatologist whether or not our bumps look
the same! ;-) (Mine are individual little round spots...almost like
little pimples, but sometimes there will be a "patch" of them where they
are all right next to each other, and man they itch like crazy!)
Alyson
At Thu, 19 Jan 2006, Bren wrote:
>
>At Fri, 6 Jan 2006, Andrea wrote:
>>
>>Thank you for your responses! Feel like I have been going crazy itching
>>for an unknown reason! I do have a rash that appears when my pain
>>starts, but it isn't a bacterial, fungal, or any other kind of textbook
>>rash. It is usually on my waist, hips, and legs and looks like raised
>>welts or hives. they go away with steroid cream, but come back each
>>month. Dr's not sure why so next stop Dermatologist.
>>
>>At Fri, 6 Jan 2006, Jessica wrote:
>>>
>>>At Fri, 6 Jan 2006, Alyson wrote:
>>>>
>>>>Do you actually have a rash or just itchy skin? I have an unexplained
>>>>rash on the inside of my right arm, over my right hip bone, and near
>>>>both of my ankles. It flares up when my symptoms are bad. In fact it
>>>>hasn't flared up since my surgery 3 months ago and then I had a bad week
>>>>of pain last week and all of a sudden there it was again!! I've seen two
>>>>dermatologists, had it biopsied, used steroid creams to treat it...the
>>>>biopsies showed that it is an allergic reaction, but the allergist can't
>>>>figure out why it would consistently pop up in those areas every time
>>>>and not somewhere else...so as of now it is still a mystery!
>>>>Alyson
>>>>
>>>>At Thu, 5 Jan 2006, Andrea wrote:
>>>>>
>>>>>I am currently being evaluated for possible endo and am scheduled for a
>>>>>lap for a diagnosis. I am new to this forum and endometriosis. I was
>>>>>wondering if anyone else has experienced an all over itching feeling ,
>>>>>more extreme during period. The doctors have ruled out any external
>>>>>parasite (no one else in my house has symptoms and there is no rash
>>>>>consistent to scabies or other bugs). There seems to not be an obvious
>>>>>allergen , just unexplained puritus. The itching seems to come at the
>>>>>same time as my pelvic and urinary pain . May not be related to endo,
>>>>>but thank you in advance for your input. Best wishes to all!
>
>Andrea:
>When I read your post, I had to write. I am a 43 y.o. nurse. Never
>had children. Periods always regular with minimal discomfort to speak
>of. My story begins in August 2005. One day I suddenly had a few itchy
>spots on my upper abdomen. Looked like pimples but they itched. Within
>a week my entire abdomen was covered in these itchy spots. I thought,
>as a nurse that maybe I was exposed to some type of fungus at work.
>Bought some Lamisil cream. It relieved the itching and the abdomen
>slooooowly began to heal. But meanwhile, my back became covered as well
>as spots on my arms, legs, neck, chest, armpits, feet, scalp, face, ear
>lobes, even the palms of my hands itched and had those raised red spots.
>I was miserable. After I stopped treating my abdomen with the Lamisil
>cream because they went away, they returned within a week. I went to
>the dermatologist and he said I had a systemic allergic reaction. He
>said no to fungus, bacterial and wasn't sure what caused it. He gave me
>a steroid shot and said I would feel better within 2 days. Also he
>prescribed Triamcinolone Acetonide Ointment, 0.1% to be applied to all
>spots. I tell you what, he saved me. The spots started to fade within
>a couple of days. The ointment helped relieve itching as well. Part 2
>of my story now... in November I had a 9 day period. Very strange for
>me. December I had 2 week period! I went to the gynecologist. He
>examined me and said I was full of fibroids. Vaginal ultrasound showed
>my uterus was the size of a 4 month pregnancy. He also saw ovarian
>cysts on both ovaries. Part 3 of my story... Jan 10, 2006. Complete
>hysterectomy along with both ovaries and my tubes, as well. Everything
>gone. He explained that I had one of the worst cases he has ever seen
>of endometriosis. I had adhesions all over the place. My bladder was
>"stuck" onto my pelvis wall. A complete mess. He saw endometrial
>growths and got rid if it as best he could. He is not putting me on HRT
>because he wants to be sure the endometriosis dies out. Estrogen feeds
>those cells. He said it takes about 3 months without estrogen and we
>can evaluate any menopause symptoms I might get and decide what to do
>from there. I am convinced that the itchy rash that I had in
>August/Sept. was an allergic response from the endometriosis getting
>out of control. So I will try to avoid HRT as long as I can. I am 9
>days post op. Incidentally, I had to have 4 units of blood transfused
>due to the bleeding endo growths and such during my surgery. I am
>hanging in there. Pelvic swelling, some pelvic pain associated with
>body positioning, bowel pain plagues me. Hope I have shed some light
>for you.
>Bren
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