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Re: All over itching--anyone?From: Bren (anonymous@obgyn.net)Thu Jan 19 13:09:51 2006
At Fri, 6 Jan 2006, Andrea wrote: > >Thank you for your responses! Feel like I have been going crazy itching >for an unknown reason! I do have a rash that appears when my pain >starts, but it isn't a bacterial, fungal, or any other kind of textbook >rash. It is usually on my waist, hips, and legs and looks like raised >welts or hives. they go away with steroid cream, but come back each >month. Dr's not sure why so next stop Dermatologist. > >At Fri, 6 Jan 2006, Jessica wrote: >> >>At Fri, 6 Jan 2006, Alyson wrote: >>> >>>Do you actually have a rash or just itchy skin? I have an unexplained >>>rash on the inside of my right arm, over my right hip bone, and near >>>both of my ankles. It flares up when my symptoms are bad. In fact it >>>hasn't flared up since my surgery 3 months ago and then I had a bad week >>>of pain last week and all of a sudden there it was again!! I've seen two >>>dermatologists, had it biopsied, used steroid creams to treat it...the >>>biopsies showed that it is an allergic reaction, but the allergist can't >>>figure out why it would consistently pop up in those areas every time >>>and not somewhere else...so as of now it is still a mystery! >>>Alyson >>> >>>At Thu, 5 Jan 2006, Andrea wrote: >>>> >>>>I am currently being evaluated for possible endo and am scheduled for a >>>>lap for a diagnosis. I am new to this forum and endometriosis. I was >>>>wondering if anyone else has experienced an all over itching feeling , >>>>more extreme during period. The doctors have ruled out any external >>>>parasite (no one else in my house has symptoms and there is no rash >>>>consistent to scabies or other bugs). There seems to not be an obvious >>>>allergen , just unexplained puritus. The itching seems to come at the >>>>same time as my pelvic and urinary pain . May not be related to endo, >>>>but thank you in advance for your input. Best wishes to all! Andrea: When I read your post, I had to write. I am a 43 y.o. nurse. Never had children. Periods always regular with minimal discomfort to speak of. My story begins in August 2005. One day I suddenly had a few itchy spots on my upper abdomen. Looked like pimples but they itched. Within a week my entire abdomen was covered in these itchy spots. I thought, as a nurse that maybe I was exposed to some type of fungus at work. Bought some Lamisil cream. It relieved the itching and the abdomen slooooowly began to heal. But meanwhile, my back became covered as well as spots on my arms, legs, neck, chest, armpits, feet, scalp, face, ear lobes, even the palms of my hands itched and had those raised red spots. I was miserable. After I stopped treating my abdomen with the Lamisil cream because they went away, they returned within a week. I went to the dermatologist and he said I had a systemic allergic reaction. He said no to fungus, bacterial and wasn't sure what caused it. He gave me a steroid shot and said I would feel better within 2 days. Also he prescribed Triamcinolone Acetonide Ointment, 0.1% to be applied to all spots. I tell you what, he saved me. The spots started to fade within a couple of days. The ointment helped relieve itching as well. Part 2 of my story now... in November I had a 9 day period. Very strange for me. December I had 2 week period! I went to the gynecologist. He examined me and said I was full of fibroids. Vaginal ultrasound showed my uterus was the size of a 4 month pregnancy. He also saw ovarian cysts on both ovaries. Part 3 of my story... Jan 10, 2006. Complete hysterectomy along with both ovaries and my tubes, as well. Everything gone. He explained that I had one of the worst cases he has ever seen of endometriosis. I had adhesions all over the place. My bladder was "stuck" onto my pelvis wall. A complete mess. He saw endometrial growths and got rid if it as best he could. He is not putting me on HRT because he wants to be sure the endometriosis dies out. Estrogen feeds those cells. He said it takes about 3 months without estrogen and we can evaluate any menopause symptoms I might get and decide what to do from there. I am convinced that the itchy rash that I had in August/Sept. was an allergic response from the endometriosis getting out of control. So I will try to avoid HRT as long as I can. I am 9 days post op. Incidentally, I had to have 4 units of blood transfused due to the bleeding endo growths and such during my surgery. I am hanging in there. Pelvic swelling, some pelvic pain associated with body positioning, bowel pain plagues me. Hope I have shed some light for you. Bren
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