Re: Endo Stage 3 effects on fertility
From: Amanda (anonymous@obgyn.net)
Thu Jan 19 11:29:51 2006
Hello,
I also have stage 3 endo and my right tube is blocked. My dh and I have
been trying to conceive for 2 years now. Before we started seeing an
infertility doc, my reg. doc performed a lap surgery. That is when I
knew I had endo (at the age of 28) From there he put me on clomid and I
had a chemical pregnancy. Shortly after we began seeing an infertility
doc. In a nut shell, I have experienced 2 more lap surgeries (one to
remove a ectopic pregnancy)and 3 IUI's. 2 out of the 3 IUI's resulted
in ecoptic pregnancies. At the time of the IUI I was on follistim
(which was a BFN) and the other two I was taking follistim and repronex.
My dh and I are undergoing IVF in March. Next month they will have me
on bcp and lupron. How does Lupron work? What are the side effects? I
would enjoy talking to someone with the same experiences. Thanks and
GOOD LUCK!
--
Amanda
At Mon, 16 Jan 2006, K. wrote:
>
>Hello, Alexandra,
>Thanks for your words of encouragement. I have to tell you that I took
>Clomid for 3 months (prior to realizing I had endo and what the problem
>really was). I turned into a "mean" person towards my husband. I found
>myself acting like I had never acted before, yelling, screaming, saying
>mean things. Now I am thankful I will be starting on the injectables
>this cycle. They aren't suppose to be as mood altering (thank
>goodness). Lucky for me I have a good supportive husband and he
>understood. Now I still find myself feeling anxious and stressed, but
>seem to have it better in control. Don't get me wrong, I still have my
>momnets of feeling "mad" that this is happening or cheated or whatever,
>but most days I'm able to think the way you were talking about..it's out
>of my hands. I can only take the treatments, etc and after that, I
>don't have control of it. I too, HATE the comments people give
>sometimes like "just adopt or relax and you will get preg." Obviously
>they don't mean to be rude or inconsiderate, they just don't fully
>understand. I think my least favorite comment was made by someone I
>work with when he said, "you don't have a baby b/c you didn't freeze
>them when you were younger!" GEEZ....I'm 35 soon to be 36. I know in
>the world of baby making that's not really youthful, but please...I'm
>not a grandma either. :) So tell me about this Lupron and why you have
>to take it before trying to get preg. I wonder why I don't have to take
>it and you do? I guess the Drs. all have different opinions. Are you
>seeing a specialist in endo? Fertility? Thanks again for chatting. It
>helps to know someone out there is in a similar predicament (not that I
>want you to have to go through this so that I have company...but you
>know what I mean.
>Thanks.
>K.
>t Mon, 16 Jan 2006, Alexandra wrote:
>>
>>Hello K!
>>Good luck! Remember keep an optimistic attitude! I imagine you are in
>>the very middle of procedures now so I will be praying for you. I do
>>not know if you are a religious person but I can tell you this: one day
>>when I was feeling really, really down, very pressured and not
>>understood at all...I said: "well, there is nothing more I can do but
>>keep doing this, so God it will be your decision" and it felt so
>>liberating,it changed my point of view, my attitude. It wasn´t my
>>responsibility anymore,I was´n doing anything wrong, it was His
>>descision, his call. (By the way I also added: "But dear God, be very
>>clear in what you want me to do and not do, and for how long, for I do
>>not want to be guessing" (happy face) And I also have felt more sure
>>about my choices and in handdling people pressure. I have had my share
>>of: "Oh just adopt, or it so sad for your daughter to be an only child,
>>or just relax, or my worst favorite: if you adopt then you´ll relax and
>>will get pregnant again!" What´s with that one!!
>>
>>By the way today was my first one month shot of lupron.
>>I am happy to have found someone with a case similar to mine, because
>>now I know I truly am not alone. (Neither are you) I would be very
>>happy if you wrote me to anonymous@obgyn.net so as to keep up with
>>your journey.
>>
>>Really: Good luck!
>>
>>--
>>Alexandra
>>
>>At Wed, 11 Jan 2006, K. wrote:
>>>
>>>Alexandra,
>>>Thanks so much for the hope that you give me. I want a baby so badly.
>>>It's hard when people say stuff like, " just adopt" or "just relax and
>>>it will happen" etc. I don't think they mean any harm, but it's just
>>>frustating because they dont understand what's really going on and that
>>>"relaxing" doesn't make the endo. go away! I am starting injectables as
>>>soon as I get my period. It hasn't come since my lap. surgery, but I
>>>feel it coming on...I always get a migrain before it and I got the
>>>migrain last night! Thanks again and I hope that both of us will be
>>>pregnant soon. My Dr. didn't recomend and Lupron before I start with
>>>the injectables. He seems to think my best bet is to try these drugs
>>>right away after my surgery. I guess they all have different opinions!
>>>Take care and thanks again.
>>>K.
>>>At Tue, 10 Jan 2006, Alexandra wrote:
>>>>
>>>>Hello,
>>>>
>>>>I have had stage three endo forabout 18 years now. The good news is: I
>>>>have a beautiful six years old daughter I had at one moment my endo
>>>>wasn´t active. I had some hormone shots to help the cycles but nothing
>>>>major. Since then my endo just got worse and now I haven´t been able to
>>>>conceive again. Just had my fourth laparoscopy and are starting my
>>>>second course of lucrin( My country´s name for lupron)next cycle. (It
>>>>has to be for six months)After I will try injectable drugs for ovulation
>>>>and artificial insamination again. So my case sounds similar to yours.
>>>>Keep your hopes high because as you see, it is posible to get pregnant
>>>>with stage three endo. Ah, I almost forgot, my phalopian tubes, parts
>>>>of my ovaries, and uterus sound just like yours, and my doctor told me
>>>>that that highly elevates our chances so...
>>>>Good luck!
>>>>
>>>>--
>>>>Alexandra
>>>>
>>>>At Sat, 7 Jan 2006, K. wrote:
>>>>>
>>>>>HI O.,
>>>>>This cycle will be our first. I am going to start on injectable drugs
>>>>>to help me ovulate and then we are going to do artificial insemination
>>>>>to help increase our chances. We will try this for up to 6 months and
>>>>>then if that is unsucessful, we will try IVF. Our RE thinks this should
>>>>>work though. He did not recommend Lupron to me. I had my lap surgery
>>>>>last month and he told me that now is the best time to get pregnant. Of
>>>>>course you know if you get preg. that it helps "calm" the endo for a
>>>>>while at least...that's a perk too. Now we just have to get there. Hope
>>>>>you have good luck. This isn't an easy journey. It's an emotional
>>>>>rollercoaster.
>>>>>Take care.
>>>>>K.
>>>>>At Sat, 7 Jan 2006, Oysterie wrote:
>>>>>>
>>>>>>Hello K.,
>>>>>>
>>>>>>Just wanted you to know that you are not alone in what you are going
>>>>>>through. I was diagnosed with stage 3 endo last year and the doc
>>>>>>removed 3 ovarian cysts. Both my ovaries had endo and the spread was
>>>>>>advanced. My tubes are clear and my uterus seems healthy.
>>>>>>
>>>>>>My husband and I really want to have a baby. I am on Lupron now and my
>>>>>>last shot will be in February. Hopefully, after this, I can get
>>>>>>pregnant.
>>>>>>
>>>>>>Were you advised to go on lupron?
>>>>>>
>>>>>>I would really like to know how things go with you, and a little more
>>>>>>about the procedures you have to do at the fertility clinic. If I don't
>>>>>>get pregnant I will also have to consider IVF.
>>>>>>
>>>>>>Well, good luck. I wish you only the best.
>>>>>>
>>>>>>--
>>>>>>Oysterie.
>>>>>>
>>>>>>At Fri, 6 Jan 2006, K. wrote:
>>>>>>>
>>>>>>>Hi Jennifer,
>>>>>>>Thank you so much for responding. the way I found out that I had endo.
>>>>>>>is b/c we went to a fertility specialist last month and they found the
>>>>>>>cyst on my ovary. Otherwise I would have never known I have endo!
>>>>>>>Anyway, we are obviously trying to get preg. right away since I just
>>>>>>>had this surgery. My understanding is this is our best chance. We
>>>>>>>start with injectables this upcoming cycle and are doing artificial
>>>>>>>insem. to increase our chances. Thanks again for your help.
>>>>>>>K.
>>>>>>>
>>>>>>>At Wed, 4 Jan 2006, Jennifer wrote:
>>>>>>>>
>>>>>>>>>From what I have been told, stage 3 and 4 are when it begins to get
>>>>>>>>tough to conceive, but that also depends on where it is and what effect
>>>>>>>>it's having on the reproductive organs. From the sounds of it, you're
>>>>>>>>still not too bad off in that way. Because, even if the left ovary was
>>>>>>>>gone completely, you can get pregnant with just one (tougher, but still
>>>>>>>>entirely possible). And you still have the ovary. My question to you
>>>>>>>>is if you plan to try to conceive soon. If so, that would probably give
>>>>>>>>you the best possible chance. Sounds like you've been cleaned out
>>>>>>>>pretty well so now may be the best time.
>>>>>>>>I wish you luck and think all will be well for you! =)
>>>>>>>>Please let us know how it goes.
>>>>>>>>Jennifer A.
>>>>>>>>
>>>>>>>>At Wed, 4 Jan 2006, K. wrote:
>>>>>>>>>
>>>>>>>>>I have been diagnosed with stage 3 endo. It is around my Left Ovary and
>>>>>>>>>the posterior cul-de-sac. My tubes are open and inside uterus is fine.
>>>>>>>>>I am seeing a fertility specialist and recently had a lap done to remove
>>>>>>>>>an ovarian endo cyst. I am wondering if anyone knows what my chances of
>>>>>>>>>conceiving might be or if the outlook is poor. I'm hoping to find out
>>>>>>>>>more info. from the Drs soon, but am just hoping for some info. now.
>>>>>>>>>THanks for any help or encouragement you have.
>>>>>>>>>K.
>>>>>>
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