Re: Finally found you ladies
From: K (anonymous@obgyn.net)
Wed Jan 18 20:49:31 2006
Michelle,
So sorry to hear about your pain! What caused you to have a hysto? And
you are still bleeding? Sounds like you need to talk to a specialist in
the field. Lupron? Crazy since you do not have menstrual. I am having
a hysto in a month, but i am worried it might be worse. Dr. wanted to
take it out the first time but i didn't consent before, now i will have
adhesions i fear. I have pain everywhere, even my kidney or lungs, i
think i have an autoimmune disease too, like Fibromyali or chronic
fatique. I get shingles once a month and pain down my legs and itchy
crawly skin all the time. This sucks. i hope you find releif, you need
to find a Dr. that will remove all adhesions endo during the surgery.
lets all stick together. K
At Wed, 18 Jan 2006, Shell wrote:
>
>HELLO,MY NAME IS MICHELLE,(shell for short)
>I HAVE NOT TALKED WITH ANYONE ELSE WITH THIS HORRIBLE DISEASE.
>I AM 36 YEARS OLD AND I HAVE HAD FULL HYSTERECTOMY.THAT WAS TWO YAERS
>AGO AND I AM IN WORSE CONDITION THEN EVER BEFORE.I CAN'T RECIEVE PROPER
>MEDICAL ATTENTION DUE TO LACK OF INSURANCE.I'VE LOST MY ABILITY TO
>WORK,MY HOME AND AT TIMES MY MIND.
>I AM PRESENTLY TRYING TO GET DISABILITY HELP BUT THIS IS A ROUND AND
>ROUND PROCESS,AS SOME OF YOU KNOW.MY ADHESSIONS ARE SEVERE,EXTREME
>PAIN,VOMITING,BLEEDING ALTHOUGH NO MORE UTERUS.I CANT SLEEP OR FUNTION
>PROPERLY AND ALSO HAVE NERVE DAMAGE AND PAIN IN MY LEGS.i WOULD LIKE TO
>KNOW IF ANYONE CAN TELL ME,HOW DO THEY DIAGNOSE ENDO IN OTHER
>ORGANS,LIVER EXT...? MY BLADDER IS IN HORRIBLE SHAPE AND I THINK MY
>LIVER IS SWELLING.MY DR. HAS TOLD ME THE ONLY WAY TO SEE ENDO IS
>LAPROSCOPY,HOWEVER I HAD ONE DONE 3 MONTHS AGO AND DR. SAID CAN'T SEE A
>THING BECAUSE THERE IS SO MUCH ENDO AND ADDHESIONS.ANYWAYS I START YET
>ANOTHER DOSE OF LUPRON NEXT WEEK.DR. SAY THEY WANT TO SHRINK ENDO THEN
>GO IN AND SEE.OTHER DR. HAVE TOLD ME THAT THEY NEED TO OPEN ME UP TO
>RIBCAGE.(HAY,NOT IN THIS LIFE TIME)I ALSO KNOE FROM EXPERIENCE THAT
>EVERY SURGERY CREATES MORE ADHESSIONS AND IT NEVER STOPS.
>SOUNDS LIKE WERE ALL SUFFERING FROM THIS INVASION AND I AM GRATEFULL I
>FOUND THIS SITE.MORE LATER,SHELL.
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)