ENDO Messages for January, 2006: Re: Help!!!!

Re: Help!!!!

From: Alyson (anonymous@obgyn.net)
Tue Jan 17 07:35:05 2006

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David,

Ummmm.....he told her what??????????????!!!!!!!!!! That is the most insane thing I have ever heard. Having endo is not directly life threatening. There have been studies that suggest that endo sufferers are more prone to other immune related illnesses such as lupus....unless she has some other diagnosed issue that could be life threatening I don't know how he could make that statement.

As far as her side effects are concerned, she can ask her doctor about add back therapy. That entails the doctor prescribing just enough replacement hormone to lessen the body's reaction to the lupron. That said...if this doctor really thinks that she is going to die of endometriosis she needs to find a new doctor fast, because clearly this one is not up to date on the disease.

here is a web site with endo information (including treatment options) http://www.morehead.org/wellconnected/000074.htm

This is a yahoo list serve where you can post a request for information on endo doctors in your area.

http://health.groups.yahoo.com/group/EndoDocs/

And here is a link to a listing of doctors

http://www.geocities.com/endovictims/endodocs.html

Keep doing your research...the more you know the better!

Good luck, Alyson

At Tue, 17 Jan 2006, David wrote: >
>Help! My best friend was diagnosed with endo aprox four years ago (but I
>am sure it was there before) after one botched surgery to remove one
>ovary due to pcos and a following lap surgery to remove the left over
>ovary plus to burn what endo was found (there was more located on the
>colon however the doctor didn’t want to remove that??) In the past year
>she had been to nine doctors of which 7-8 of them had little to no
>expertise on this subject and were found to be of little help. The last
>prescribed Lupron shots of which she has already gotten the first of the
>six and is due for the second. She has been experiencing the side
>effects of hot flashes, migraines and severe nausea along with bleeding.
>I would love any help on how to deal with the nausea she is having a
>terrible time dealing with that.
>
>Also she had asked the doctor on the last visit on his expectations for
>the future. He had bluntly told her that if the Lupron does not work
>and the endo spreads she will have about 5-10 years to live!!! Please
>someone let me know that there is a light at the end of the tunnel. I
>have a somewhat distrust of doctors in general and have a very hard time
>accepting what he had to say.

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