Re: ANDOMYOSIS---- POSSIBLE HYSTORECTOMY
From: Tara (anonymous@obgyn.net)
Sun Jan 8 17:38:53 2006
Dear Jasey,
Thanks so much for writing. Sounds like you had quite an awful time
before your hysterectomy. I am so happy to hear your sex life and life
in general has improved. Life should always go in an up direction. As
you know with adeno and sounds like you had endo as well it always seems
as if life is going in a down direction.
I also have adenomyosis and am coming to that hysterectomy road. Over
the last several months my BCP's haven't been working and I was getting
a hot pain below my calf each time I took them. I knew if I didn't go
off I would have had a blood clot, or worse, a stroke. I am now trying
Prometrium (3 days) and it really took the stabbing pain away. I am not
sure how it will work out as I went to the gym today all confident and
came home bleeding again. So far I've bled almost every day except for
a few (maybe 2-5) days in between since Sept. I am so tired. If the
Prometrium fails than I will wind up with an Emergency Hysterectomy
because when my body bleeds it is relentless without the meds. My
doctor is not sympathetic to a hysterectomy. I am calling her tomorrow
to try to change her mind. Wish me luck.
Keep well and thanks for sharing your story,
--
Tara
At Sat, 7 Jan 2006, Jasey wrote:
>
>I went through 2 really bad years with multiply visits to the ER and a
>prescription of vicodan for a year till my insurance would approve my
>hystorectomy. I did the birth control pills but bled through. My
>endrometriosis had spread through my lower abdominal cavity. I had to
>go through a laproscopy prior to my insurance company allowing my
>hystorectomy. I had a total hystorectomy in Jan. 2005. It was the
>best thing I ever did. The lab found andymosis throughout my uterus
>which was causing the bleeding and sharp pains and the endrometrosis was
>causing the other problems. Prior to my hystorectomy, sex was painful
>and many times I had tears in my eyes when I pretended it didn't hurt.
>It took a long sit down with my husband talking about our sex life and
>how much it hurt for me to come to grips that it was alright to not have
>intercourse but we could still have a sex life. It is now Jan.2006 and
>life is great! Sex is great! I am on syntest which is working well for
>me and I will be on some form of that probably for the rest of my life.
>Syntest is like premarin and helps with the hot flashes. I can tell
>though if I forget to take my meds for a day though because I get
>irratible and can not sleep well. Good luck to any one reading this and
>know that a hystorectomy is not a bad thing for those who need it.
>
>At Thu, 18 Nov 2004, Wendy wrote:
>>
>>Tracy,
>>I am so glad to hear from someone my own age going through the same
>>thing. Sorry that you are having to experience this but I am glad to
>>have someone to talk to about it. Pleaqse contact me by email and let
>>me know how the surgery goes. I will be praying for you. And Thanks so
>>much for making me feel not alone. Thanks again,
>>Wendy
>>My emial is wendy_rapad@hotmail.com
>>I look forward to hearing from you.
>>
>>At Fri, 12 Nov 2004, Tracy wrote:
>>>
>>>Hello,
>>>I'm really glad you posted this question because I am going through the
>>>same thing. I am 30 and I have adenomyosis and endometerosis. I am
>>>finished having children and have opted for the partial hysterectomy. My
>>>doc thinks that I will benefit alot from this. The pain in my uterus is
>>>far more worse than my endo pain. I'm scared too but the thought of no
>>>more periods makes me excited. I am to the point of hemorrage when I
>>>have my period. The doc is trying to schedule me right before
>>>Christmas. I cannot take bc or hrt so there aren't too many options for
>>>me. From what I researched, the sex gets better after a partial
>>>hysterectomy. I have yet to find out. I'll let you know if how I feel
>>>when I have mine.
>>>Tracy
>>>
>>>At Fri, 12 Nov 2004, anonymous@obgyn.net wrote:
>>>>
>>>>My doctor has determined that I have andomyosis, which I have never
>>>>heard of till now. He recomends I have a parctial hystorectomy to
>>>>removed my uterus. I am 30 years old and I am scaredof this for several
>>>>reasons. I would like to hear from women who have had thier uterus
>>>>removed.I want to know if it chanded your sex life any for you or your
>>>>partner. Please help me make this decision.
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