Re: how fast does endo grow?
From: Alexandra (anonymous@obgyn.net)
Thu Jan 5 10:34:56 2006
Hello all:
I'm new here and still understanding how this forum works. But I am
happy to finally have someone to talk about endo to. I am 35 years old
and was diagnosed with endo when I was about 18. It has been a long
journey, specially since in my country (Guatemala, Central America) this
was so new and unexplored.
But I stumbled (Sorry for my English) onto this forum and your messages.
It seems to me that laparoscopy is an excelent diagnostic and treatment
measure. Iīve had four !!
The last one two weeks ago. I have one daughter, she is 6 now, and have
been trying to conceive for almost 5 years. My last laparoscopy was
before my pregnancy. I went through a lot of doctors and finally found
the one. He was somewhat reluctant to perform a fourth laparoscopy,
specially since I was on strong hormone therapy to treat my endo for six
months about a year ago. I insisted and ...guess what: Worst case of
endo my doctor had seen in my country.
He "burned" and "cut" and whatnot. But it wasnīt enough so I will have
to undergo hormone therapy again, beacuse I am trying to get pregnant
again.
So donīt worry about the results you may find, and if it will be worth
it. I agree, one way or the other you will know. You will know.
I hope I helped someone.
Best regards.
Alexandra
At Thu, 5 Jan 2006, Kristina wrote:
>
>Hi there. I am going through the same thing right now. I am really
>scared I am not making the right decision by having the Lap done, but I
>am going for it. I am scared it is something else and I will feel like
>I made the wrong decision if the lap shows nothing.
>
>If you are like me and feel this way, then don't. I am readjusting my
>way of thinking and telling myself that this will give me an answer no
>matter what, either I have it or I don't(instead of worrying that I
>still won't know what's wrong with me). That is a much more positive
>way to think of it! Even if it causes a couple of adhesions, they might
>not even be painful, especially compared to what you are used to dealing
>with! It will also prevent you from taking Endo (or other) for something
>you might not even have.
>
>It has been almost 3 years now since my pelvic pain started. I wish I
>would have been more persistant, so I might have been able to prevent
>myself from ever feeling this bad.
>
>If you still choose to do the lap, I will be your "buddy" and we can
>dive into it together. Like I said, it will give you some kind of an
>answer, so it's definately worth it! We went through 10 million other
>tests, what's one more?
>
>Hugs,
>Kristina
>
>At Sat, 31 Dec 2005, har wrote:
>>
>>>different in everyone. How did you come about the idea you had endo? I
>>>only ask cause most womens comes with a lot of chronic pain. Anyways,
>>
>>I had multiple ultrasounds and colonoscopy and all sorts of blood tests
>>etc. but they could not find the source of my pain, everything is
>>clear. I have chronic pelvic pain which is not too strong along with
>>other symptoms which point to endo.
>>
>>>The lap is totally up to you. I'am however unsure why they would choose
>>>to do a lap before trying the less extenive things like Birth Contorl,
>>
>>I went to Dr. Seckin (recommended by Dr. Reich's office) an endo
>>specialist as a last resort and he recommended going in with a lap. I
>>guess I am just plain scared that maybe and just maybe if this is
>>something else then I am just going with too invasive and agressive of
>>an option as surgery.
>>
>>On the other hand, if I do have endo then it makes no sense to me to
>>have anything else but surgery since there is nothing out there as far
>>as I know which has been proven to stop endo growth or reduce it. At
>>least a good surgery would perhaps give me relief for longer time. I
>>know I do not want hormones.
>>
>>>getting their endo cleaned out before trying to concieve. I would
>>>imagine it would make things easier for them. If your worried about
>>
>>I am still in school and don't want to have a baby until later --
>>hopefully in couple of years. If I could have a baby now, I would just
>>go for it but it would be highly impractical right now. I love kids and
>>do not want to destroy my chances of having one. I just got married a
>>couple of months back :(
>>
>>>them burning the endo or freezing it out you can always tell the Dr to
>>>only get rid of it if its bad. You can say to him that you would rather
>>
>>He is going to excise them if he sees any. I am of the opinion if I
>>have to have lap then it should be accompanied with excision because
>>multiple surgeries are just a bad idea.
>>
>>>not have it removed if its only a few spots and if he thinks it wont
>>>affect you trying to conceieve.
>>
>>Thanks! That sounds like a good idea!
>>
>>>where you'd want to wait. One thing about endo is that you ould have
>>>the worst stage five endo and have no pain, or only have half a dozen
>>
>>Yes, endo is horrible in that respect, I know pain has no correlation to
>>the extenet of the disease. Maybe that is one of the reasons why it is
>>so frustrating and psychlogically so hard. I would give anything to
>>know for sure that I have endo before going and having a surgery.
>>
>>Thanks for listening -- I just needed to vent.
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