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Re: how fast does endo grow?
From: Alyson (anonymous@obgyn.net)
Tue Jan 3 12:42:09 2006
Har,
I had my second lap about three months ago for endo...my first was only
a year prior. In that time frame my endo advanced rather quickly from a
very mild case to having it throughout my pelvic cavity (uterus front
and back, sacral ligament, ovaries, tubes, abdominal wall). I also
developed an orange sized endometrioma in that time frame. I have read
posts on here from women that have had a lap every couple of years, to
women that have had to have the surgery multiple times a year. I think
it all depends on your body. Multiple surgeries do increase the
possibility of adhesions, but adhesions can also form in response to the
endo growth. As far as the pregnancy goes, my doctor told me that "data
shows" that the best time to try to get pregnant is within 4-6 months
following a laproscopic surgery/endo removal.
Good luck to you,
Alyson
At Mon, 2 Jan 2006, har wrote:
>
>Dear Rhonda,
>
>Thanks for the reply. I have read a lot on endo but as you said due to
>so little research there is not enough data to make a "comfortable"
>decision about which treatment to accept for endo, it is extremely
>frustrating. That is the reason I asked whether anyone knew how fast on
>average endo grows. All medical treatments have "maybe" attached to
>them and the surgical option have the risk of added adhesions -- which
>makes me nervous.
>
>In the end, I think lap should be what I need but am just firghtened
>about the surgery part of it. Thanks for the reassuring words!
>Har
>
>At Mon, 2 Jan 2006, Rhonda wrote:
>>
>>I had my first lap Oct 13th. I had very bad pain for the first day or
>>two of my periods and then the night before the lap I had bad not
>>excrutiating but bad pain. I told the doc and he found that my
>>fallopian tube had adhered around my ovary. So the surgery is not the
>>only reason for adesion the blood that builds up in your body each month
>>irritates your insides causeing inflamation and adesions from the
>>inflamation. This is how my doc described it to me. I can not use any
>>type of hormone so I went directly to a lap. As for your decision as to
>>a lap...is it the procedure that has you nervous? I was scared to death
>>and was trying to find any reason I could to cancel it but something
>>inside me said I had to have it done. The lap wasn't as bad as I
>>thought it might be, I got an infection because of my stupidity of using
>>regular tape on my incision after the sterie strips came off, they glued
>>me together and not stiched, then they put strips over the incision to
>>keep it from coming apart. Well regular medical take is not steral so
>>if they use sterie strips tell them you want some to go home with you.
>>Even the infection wasn't bad but the jerk of a dr I had to see ripped
>>my incision open with no pain killers and since then has been reported
>>to her supperiors for her lack of compasion and bedside mannor towards
>>patients. I have not had any improvment due to the location of my endo
>>(it is right around my bladder, urethra and ureters) my doc wouldn't
>>cauderize it due to the risk to those organs. Just the diagnosis has
>>changed my life. I have more drive to help others and to educate people
>>about endo. I also have days that I am very angry because no one seems
>>to be doing enough to find new treatments (there is research ongoing but
>>when you don't see immediate results you get down in my case). I think
>>this has alot to do with my not being able to use any of the currant
>>treatments. Many of us have children mine was before I had endo (I
>>think mine stems from my c-section) I have a friend who has stage 4 and
>>she has had laps before getting pregnant with both of her children. She
>>is an insperation to me too.
>>
>>Well after writing all this I guess the bottom line is that you need to
>>do research, think about your own pain, and talk to your doc. Only you
>>can make th eright choice as to what to do.
>>If you have any questions feel free to post them, the only stupid
>>questions asked are those that are not asked at all. Hope all is well
>>Rhonda
>>At Sat, 31 Dec 2005, har wrote:
>>>
>>>I am scheduled to have a lap next month (my first one) but as my pain is
>>>not bad at all I want to know what will happen if I left the endo alone
>>>and took no treatment until a year or two from now after I have had a
>>>baby. How bad can it get? Are there any studies which monitor the rate
>>>of growth? Does the rate change from one person to the other?
>>>
>>>I am frightened of getting the lap since I know it can also cause
>>>adhesions etc. Does anyone know if the lap affects one's chances of
>>>having a baby?
>>>
>>>Apologies -- I am just afraid and don't know if my decision of lap is a
>>>correct one or not. I have been to several doctors and they think I
>>>have endo but I have not really tried any treatment for endo as yet, not
>>>even the continous birth control pill and am going straight for a lap.
>>>
>>>Healthy and happy new year to everyone,
>>>Hareem
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