ENDO Messages for December, 2005: Re: Painful bladder?

Re: Painful bladder?

From: Jessica (anonymous@obgyn.net)
Sat Dec 31 00:04:22 2005

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In reply to: Jo: "Painful bladder?"

Have you ever talked to a Urologist? It sounds to me like you have something called ICS Intersistal Cystitis.

Interstitial cystitis (IC) is a condition that results in recurring discomfort or pain in the bladder and the surrounding pelvic region. The symptoms vary from case to case and even in the same individual. People may experience mild discomfort, pressure, tenderness, or intense pain in the bladder and pelvic area. Symptoms may include an urgent need to urinate (urgency), a frequent need to urinate (frequency), or a combination of these symptoms. Pain may change in intensity as the bladder fills with urine or as it empties. Women's symptoms often get worse during menstruation. They may sometimes experience pain with vaginal intercourse.

I would do a little more research on the net. I got the paragraph above at http://kidney.niddk.nih.gov/kudiseases/pubs/interstitialcystitis/ And I would def get a reccomendation to a good Urologist. Good Luck. I knwo that bladder pains can be some of the worst. Especially at night. I have them too. I have to get up in the middle of the night when I get spasms and it feels like I have to pee a lot. I ussually find a hot water bottle or hot bath help not wearing tight underwear or pajams to bed so they do not tighten around your bladder and its weird but antihystimans(sp) like benydrl help with not only the sleep but the spasms too. hope the Dr can provide some relief. Jessica

At Fri, 30 Dec 2005, Jo wrote: >
>Hi there. I'm new to this site, but not to endometriosis. I was
>diagnosed a few years ago and have had a lap, followed by a hysterectomy
>a year later. Both surgeries gave me relief for a couple of months and
>thats it. Between the lap and the hyst i spent four months taking
>"danazol" (i think that is how it is spelt) which didn't help at all.
>Now it has been almost two years since my hyst and i am waiting for an
>MRI to see if the endo is in my ovaries. If it is, than they will also
>be removed, and if not i will start Lupron. But my main question is,
>does anyone have bladder pain with their endo? I have the worst bladder
>pain. It feels like i have held my bladder to the point of pain, but
>i'm not holding anything. Yet it is the same pain as my endo pain. I'm
>not sure if this is making any sense, but i am getting desperate. My
>MRI isn't until the end of may and i take Advil four at a time to take
>the edge of the pain. I have been checked over and over for IUT's but
>the tests always come back clear. Is this normal endo pain or is there
>something else going on that is not being picked up by bloodtests? Any
>ideas?
>Thanks in advance for any info you can give to me.
>Jo

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In reply to: Jo: "Painful bladder?"

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