ENDO Messages for December, 2005: Re: Painful bladder?

Re: Painful bladder?

From: Kristina (anonymous@obgyn.net)
Fri Dec 30 19:30:36 2005

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At Fri, 30 Dec 2005, Jo wrote: >
>Hi there. I'm new to this site, but not to endometriosis. I was
>diagnosed a few years ago and have had a lap, followed by a hysterectomy
>a year later. Both surgeries gave me relief for a couple of months and
>thats it. Between the lap and the hyst i spent four months taking
>"danazol" (i think that is how it is spelt) which didn't help at all.
>Now it has been almost two years since my hyst and i am waiting for an
>MRI to see if the endo is in my ovaries. If it is, than they will also
>be removed, and if not i will start Lupron. But my main question is,
>does anyone have bladder pain with their endo? I have the worst bladder
>pain. It feels like i have held my bladder to the point of pain, but
>i'm not holding anything. Yet it is the same pain as my endo pain. I'm
>not sure if this is making any sense, but i am getting desperate. My
>MRI isn't until the end of may and i take Advil four at a time to take
>the edge of the pain. I have been checked over and over for IUT's but
>the tests always come back clear. Is this normal endo pain or is there
>something else going on that is not being picked up by bloodtests? Any
>ideas?
>Thanks in advance for any info you can give to me.
>Jo

I have this same feeling. It feels like I have to pee really, really bad but I could still hold it for hours. It's very much as you desribed. I told my doc it felt like I have a "stiff bladder" but it has progressed from a stiff feeling to a painful one. It does not burn when I pee usually, but it has on a few occasions. The painful full/stiff feeling is worst in the morning and whenever my pelvic pain it really bad.

I haven't been diagnosed with anything yet though. It is down to Endo, IC, Irritable Bowel, or a disorder of the nervous system.

I hope you find an answer to your probelms.

Next message: anonymous@obgyn.net: "Re: Sick EVERY month this time :(??"
Previous message: Kristina: "Re: painkillers"
In reply to: Jo: "Painful bladder?"
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