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Re: Desperate in Ottawa with UTI symptoms
From: Bev (anonymous@obgyn.net)
Thu Dec 29 12:30:33 2005
Michelle, Has anyone suggested that you may have IC? Interstitial
Cystitus (sp?)It often accompanies Endo, and it can be a reason for
blood in the urine. In the lists of tests you did not mention a
cytoscopy, or a urodynamics study. In the cytoscopy they send a camera
into the bladder to see what is going on, if they did not do this yet I
am very surprised. My urologist wanted to do it immediately when he
found out I was diag. with endo. I kept on having symptoms of UTI with
blood and never had bacteria. If there is endo on or around the bladder
causing adhesions on the bladder it can feel like UTI all the time. I
know, it is the story of my life. I may have a mild case of IC as my
DR. put it. I also have endo, also lasered off, and I have a fibroid
tumor growing in that area. All of this causes a sensitive bladder that
reacts to everything. It may be the endo, but if they have not done
those two tests I would go a urologist who will perform them. Having
any pain is pretty bad but to combine endo pain and bladder pain ~ with
bladder frequency is the worst. Good luck I hope you can find a
solution prettey soon. B....
At Thu, 29 Dec 2005, Michelle wrote:
>
>I am desperate and hope someone out there might have some answers. I am
>34 and was diagnosed with endo 7 years ago. I had tremendous lower left
>pelvic pain that occurred quite regularly. I had the laser surgery to
>remove any lesions and was put on Depo. Surprisingly enough within a
>couple of months I forgot all about the whole endo ordeal and was pretty
>much symptom free. I went off of Depo. around four years ago.
>
>During the last couple of years I have had tons of "UTIs". I usually
>ran to a clinic (as I no longer had a regular physician), they did the
>dip stick thing, told me I had an infection and gave me antibiotics. In
>March I had yet another infection. It did not respond to 2 sets of
>antibiotics. I ended up going to the emerge with extreme flank, pelvic
>and lower back pain along with lots of blood (could see for myself) in
>my urine. To sum up the last 10 months since then, I simply will say
>it's been hell. I have had every test possible, (ultrasounds, cat
>scans, IVP, tons and tons of urinalyses). Every test comes back normal.
>Even the cultures from the urinalysis came back normal. My symptoms
>have been getting more intense and frequent. I have recently started
>seeing a new doctor. We have tried just about everything. She said
>that all that was really left to explore is the endo. I never really
>even thought about endo. since 2001. I did some research on the
>internet and I was surprised at the symptoms for endo and the urinary
>track. They listed all the symptoms I have been dealing with (Flank
>pain, rib pain, pelvic pain, UTI symptoms, FREQUENCY and BURNING when
>urinating, blood in urine). AWESOME!!! BINGO!! That is it I thought! My
>doctor sent me to a uroguyneclogists. She told me it was extremely
>unlikely that I could have endo on the kidney. She said I would be a
>case study if it was so. She told me to go back on the pill and wished
>me a good day. I went home EXTREMELY depressed. I don't feel I can
>take much more. I have missed tons of work, social events and am simply
>miserable.
>
>Yesterday, I expressed my frustration to a friend in the medical
>profession. She explained that pain can radiate and although it may not
>be on the kidney I can still feel as though it is.
>
>My family doctor is gone for two more weeks, I have no more narcotics
>left, and I hurt and have to urinate all the time. Does anyone have any
>suggestions????? I desperately need help!
>
>Michelle
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