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Desperate in Ottawa with UTI symptomsFrom: Michelle (anonymous@obgyn.net)Thu Dec 29 10:00:55 2005
I am desperate and hope someone out there might have some answers. I am 34 and was diagnosed with endo 7 years ago. I had tremendous lower left pelvic pain that occurred quite regularly. I had the laser surgery to remove any lesions and was put on Depo. Surprisingly enough within a couple of months I forgot all about the whole endo ordeal and was pretty much symptom free. I went off of Depo. around four years ago. During the last couple of years I have had tons of "UTIs". I usually ran to a clinic (as I no longer had a regular physician), they did the dip stick thing, told me I had an infection and gave me antibiotics. In March I had yet another infection. It did not respond to 2 sets of antibiotics. I ended up going to the emerge with extreme flank, pelvic and lower back pain along with lots of blood (could see for myself) in my urine. To sum up the last 10 months since then, I simply will say it's been hell. I have had every test possible, (ultrasounds, cat scans, IVP, tons and tons of urinalyses). Every test comes back normal. Even the cultures from the urinalysis came back normal. My symptoms have been getting more intense and frequent. I have recently started seeing a new doctor. We have tried just about everything. She said that all that was really left to explore is the endo. I never really even thought about endo. since 2001. I did some research on the internet and I was surprised at the symptoms for endo and the urinary track. They listed all the symptoms I have been dealing with (Flank pain, rib pain, pelvic pain, UTI symptoms, FREQUENCY and BURNING when urinating, blood in urine). AWESOME!!! BINGO!! That is it I thought! My doctor sent me to a uroguyneclogists. She told me it was extremely unlikely that I could have endo on the kidney. She said I would be a case study if it was so. She told me to go back on the pill and wished me a good day. I went home EXTREMELY depressed. I don't feel I can take much more. I have missed tons of work, social events and am simply miserable. Yesterday, I expressed my frustration to a friend in the medical profession. She explained that pain can radiate and although it may not be on the kidney I can still feel as though it is. My family doctor is gone for two more weeks, I have no more narcotics left, and I hurt and have to urinate all the time. Does anyone have any suggestions????? I desperately need help! Michelle
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