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Re: 2 months since surgery
For more information on symptoms and treatment of endometriosis visit www.EndometriosisZONE.org.
From: Cindy (anonymous@obgyn.net)
Wed Dec 28 13:08:44 2005
I'm glad my story could help. I hope that you have plently of good
days, too. I know since you're writing in this forum, you must be in
pain and I am so sorry for it. I hope the forum helps you as much as it
has helped me throughout the last year. Just knowing that other people
are sharing in your experience helps, ya know? And as much as you
probably are sick of crying, that actually helps, too. Every time you
cry, you release the hormones that make you sad in your tears. So think
of it as a cleansing. Let those tears wash away the bad stuff!
To answer your question, my doctor who performed the laparotomy
specializes in mostly fertility issues which of course involves endo,
but it's not his sole practice. I started going to him originally
because I was pregnant and needed a new OBGYN. So, he delivered my
baby. He was the one who diagnosed endo after a few years of other
doctors' misdiagnoses. I have to say I was quite lucky in that respect.
It was a little weird at first, because he is only a year or two older
than me so I thought he couldn't possibly have enough experience with
endo to know what he was doing. But the other hand of that was, he was
a little fresher out of school than my other doctors, so he was more
"up" on the latest techniques and warning signs, etc.
I hope you can find a good doctor, too. Don't give up until you are
comfortable with the doctor, his techniques, his bedside manner, his
nurses, his office, EVERYthing! That is most important. You need
someone who will work WITH you and not TELL you what you need. Your
instincts are the ones that will tell you what you need. Good luck to
you. I hope you feel better soon.
Love, Cindy
At Tue, 27 Dec 2005, Elaine wrote:
>
>Thank you so much for this encouraging news! It's nice to know there is
>still some hope for all of us suffering from endometriosis! Out of
>curiosity, was your sugeon an endo specialist or just a gynecologist?
>I'd give anything to find a doctor as good as yours sounds. I had a
>hyst and am still in pain! All I wanted was to feel better. Like you
>did, I cry everyday with utter hopelessness. My dream is to someday
>find a doctor that will remove all this gunk inside me so I can feel
>halfway normal. I pray that you will continue to feel great and be able
>to live well! Your strength and hope is inspiring. Thanks for sharing!
>
>At Tue, 27 Dec 2005, Cindy wrote:
>>
>>Hi ladies! I haven't been writing in a while. Hope you are all having a
>>good holiday season. I wanted to give you a quick update on myself in
>>hopes it could brighten at least one person's feelings about endo. I
>>was feeling awful for about 3 years. I went through 2 laparoscopies,
>>hormone therapy including Lupron, and I tried to change my diet in hopes
>>that better nutrition would help. Nothing worked. My OBGYN finally
>>made the "big cut" and performed a laparotomy. He told me he was going
>>to clean up all the endo & adhesions he could find and take out my
>>appendix as a precautionary measure. I was a little leery, so I went to
>>my regular GP who assured me my doctor is a good one and he was doing
>>the right thing. My OBGYN also said he was going to put in an adhesion
>>barrier to help prevvent new adhesions from forming after the
>>laparotomy. Well, I had that surgery on 10/18. It turns out my
>>appendix had an adhesion around it that looked like a rubber band
>>choking it. It cause my appendix to curve up into my intestines which
>>was causing major bowel movement issues. Who knew?? It definitely took
>>a good month to heal, and I was worried for the first couple of weeks
>>because it hurt so bad I couldn't walk. I thought I had made a terrible
>>mistake and was so depressed that I cried nonstop. But then, I started
>>feeling better. And then better still. And then so much better that I
>>was actually happy. Now I feel SO great!! I really had no idea how bad
>>I was feeling until I started feeling better (if that makes sense). I've
>>been pain free for over a month now. I even had a real period at the
>>beginning of the month. It lasted 11 days, and I did have some cramps,
>>but nothing as unbearable as it used to be.
>>I really hope all you ladies can find something that works for you. And
>>I hope everyone shares their stories- good or bad- because they all
>>help. Knowledge is power. I wish you all the best, and please keep
>>your fingers crossed that this surgery keeps my endo away for good. My
>>husband and I are going to start trying for our second baby at the
>>beginning of the year.
>>Love to you all,
>>Cindy
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