ENDO Messages for December, 2005: Re: I just want it all OUT!!!

Re: I just want it all OUT!!!

From: Elaine (anonymous@obgyn.net)
Mon Dec 26 15:55:33 2005

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In reply to: JustMe: "I just want it all OUT!!!"

Sorry to hear you are having so much trouble! I am assuming you have endometriosis? I am not sure what cystic cervicitis is but I will have to look that one up. I just wanted to share with you that I have the opposite problem. My gyn only did a diagnostic laparoscopy (didn't try to remove the "extensive endo" he found). Then we tried numerous bcps and Lupron to no avail. After one year of hell, he wanted to do a complete hysterectomy with removal of ovaries. I wanted another laparoscopy to remove the endo but he wouldn't do it. Said he reserved this procedure for those trying to become pregnant and that it would only provide short term relief. A second opinion yielded the same b******t. I couldn't get any help for the endo unless I consented to a hysterectomy. So in desperation I did. Well, it has been 4 1/2 months since the surgery and my life is worse now than before. I am STILL in pain from endo (because gyn still did not remove remaining endo off my bowels, bladder, or appendix) and now facing unending surgical menopause, which for me has included constant headaches, hot flashes, night sweats, joint pain, achiness all over, fatigue, insomnia, worsening IBS, acne, no libido, depression and mood swings, and higher risk of osteoporosis. I have lost several pounds due to continuing nausea and unable to eat much, and am barely hanging on to my job. This is with hormone replacement! I have tried three different kinds and even added progesterone and still can't get balanced. What I have since learned is that a hysterectomy is no cure for endo, unless you go without any hormone replacement forever and are lucky enough to have a surgeon that removes ALL the endo inside you at the time of the hysterectomy, plus both ovaries. Then maybe you have a shot at relief. Just today I talked to a girl at a hair salon and she also had a hysterectomy with removal of both ovaries one year ago. Since then she has had two more laparoscopies to remove more endo growing inside her, despite the hyst, and still she suffers daily from endo pain, not to mention surgical menopause. She is 26 and I am 33. Some women are luckier and get permanent relief from a hysterectomy, maybe don't even have trouble with surgical menopause, but I was not one of them. There are days I am suicidal I feel so awful. My relationship with my boyfriend is suffering, and my job is on the line. Whenever I hear someone say thay want a hysterectomy, I cringe! Sorry if I sound so negative, I just think a hysterectomy brings on more problems. I wish I had taken more time to find an endo specialist and tried every other option first. Of course, I see that you have other problems also, like the chronic cystic cervicitis, so maybe you would benefit more from a hyst than I did. Too bad you don't have my doctor and insurance. He would have approved it in a heartbeat! Just please do as much research as you can before getting a hysterectomy. Educate yourself about hormone replacement and long term risks of those, long term risks and problems associated with a hysterectomy (especially with removal of ovaries), how to cope with surgical menopause, vitamin supplements to take to ease your body into the transition and prevent problems like osteoporosis, etc...There is no way to know how a hysterectomy will affect you until it's done and too late to turn back. There is so much more to the affects of a hysterectomy than just not being able to have children. If after all this research and after all the other options you have exhausted you still feel that a hysterectomy would be of benefit to you, then at least you can be more at peace with your decision. Good luck to you and I hope you find relief!

At Mon, 26 Dec 2005, JustMe wrote: >
>Bless those of you who really want to keep your wombs. I don't. But
>I'm having to jump through hoops to get it out. Never mind that I have
>chronic issues, chronic cystic cervicitis, monthly pain that brings me
>to my knees and puts me into cold sweats and just this month got to the
>point of bringing me to tears; never mind that I have to scrub my
>bathroom every time I change a tampon because it looks like a crime
>scene and all my sheets and half my pants are ruined every month. I
>take vitamins/iron so I'm not anemic; all my lab results are normal; I
>have no fibroids; I am perfectly healthy - but I have cramps that are
>worse than labor pains ever were every month for two days and I can't go
>out during that time - if I do I have to carry baby wipes and a change
>of clothing. And the cramps aren't intermittent like labor pains are -
>they stick around. Make me lightheaded and woozy and hot and nearly
>pass out. Even my knees hurt.
>
>Just venting - it just amazes me that those of us who could benefit from
>a hysterectomy and desperately want one...can't get one...
>
>B.

Next message: Rhonda: "What type of pain killers do you all use my pain decribed"
Previous message: Betsy: "Re: fibrovan"
In reply to: JustMe: "I just want it all OUT!!!"

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