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Re: Stage IV and too young for a Hysterectomy
From: anonymous@obgyn.net
Mon Dec 19 12:07:32 2005
My dear...I feel for you. I am stage 3/4...the surgeries aren't fun at
all...and nor is Lupron. However, I am confused to how long you have
been on the drug. In Canada, it is only legal to have a patient on the
drug for 6 months at a time. Your body needs time to recover from the
side effects before yo ucan go back on the drug.
At Wed, 14 Dec 2005, Amanda wrote:
>
>I am SO right there with you! I have been suffering with this for years
>and I am only 26! I was diagnosed at 22 and too far gone to help! I am
>TOO young for a hyst and desperatly want children someday...maybe I'm
>desperate because I feel like it's being taken away from me!!! It does
>take over your life and no one can TRULY understand it unless they've
>been there! I DO!!! The "menopause" made me feel old and fat and ugly!
>That sounds SO cheesy but it's reality! My friends teased me because I
>was always tired and "couldn't keep up"!!! I stopped the Lupron almost 2
>years ago because my body just couldn't handle it anymore and the result
>is an upcoming surgery to remove anything that can be (unfortunately
>most of it can't be due to other possible organ damage)! I think I would
>rather live with the pain than a colostomy! You're not alone and I have
>to believe that SOMEDAY they will come up with something to help us!
>
>At Wed, 7 Dec 2005, Amanda wrote:
>>
>>I just turned 21 and when they diagnosed me at 18 it was already way too
>>out of control to do anything about. I am in pain everyday of my life
>>which I know is not unusual with a case as bad as mine, but my problem
>>is that I haven't got a period in over 3 years and I don't really feel
>>like a girl anymore anyway. I have been on Lupron for the last year and
>>a half and they don't ever plan on taking me off. It seems like this
>>disease is taking over my life and there is nothing that I can do to
>>stop it. I know that I have good doctors, and that they know what they
>>are talking about, but how do you get past the feeling that you are in
>>some ways not as good as everyone else and the longing to just remember
>>what it's like to be normal. To me normal is a doctor appointment or
>>physical therapy at the very least every other week. I know it's pretty
>>bad when I start to even miss my period. I just think I'm way to young
>>to be in menopause and this just isn't fair. Something good needs to
>>happen. They have to be working on something that may help people like
>>me.
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