ENDO Messages for December, 2005: Re: Stage IV and too young for a Hysterectomy

Re: Stage IV and too young for a Hysterectomy

From: Amanda (anonymous@obgyn.net)
Wed Dec 14 02:40:43 2005

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I am SO right there with you! I have been suffering with this for years and I am only 26! I was diagnosed at 22 and too far gone to help! I am TOO young for a hyst and desperatly want children someday...maybe I'm desperate because I feel like it's being taken away from me!!! It does take over your life and no one can TRULY understand it unless they've been there! I DO!!! The "menopause" made me feel old and fat and ugly! That sounds SO cheesy but it's reality! My friends teased me because I was always tired and "couldn't keep up"!!! I stopped the Lupron almost 2 years ago because my body just couldn't handle it anymore and the result is an upcoming surgery to remove anything that can be (unfortunately most of it can't be due to other possible organ damage)! I think I would rather live with the pain than a colostomy! You're not alone and I have to believe that SOMEDAY they will come up with something to help us!

At Wed, 7 Dec 2005, Amanda wrote: >
>I just turned 21 and when they diagnosed me at 18 it was already way too
>out of control to do anything about. I am in pain everyday of my life
>which I know is not unusual with a case as bad as mine, but my problem
>is that I haven't got a period in over 3 years and I don't really feel
>like a girl anymore anyway. I have been on Lupron for the last year and
>a half and they don't ever plan on taking me off. It seems like this
>disease is taking over my life and there is nothing that I can do to
>stop it. I know that I have good doctors, and that they know what they
>are talking about, but how do you get past the feeling that you are in
>some ways not as good as everyone else and the longing to just remember
>what it's like to be normal. To me normal is a doctor appointment or
>physical therapy at the very least every other week. I know it's pretty
>bad when I start to even miss my period. I just think I'm way to young
>to be in menopause and this just isn't fair. Something good needs to
>happen. They have to be working on something that may help people like
>me.

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