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Re: any of you gone entirely off hormones with stage IV?
From: Amanda (anonymous@obgyn.net)
Wed Dec 14 02:09:38 2005
About a year ago, I decided to "chuck" the drugs just as you did! I just
couldn't take it anymore! Either my hair was falling out or I was
crying, queasy, irritable, my hands cramped...you name it...and it was
all because of medication to treat my "problem"! I am 26 and have had
endometriosis since I was 12...at the time, it was diagnosed as cysts! I
was just diagnosed 4 years ago and it was already stage IV. I have had
surgeries and there are some adhesions that can't be removed for health
risks. I even took the Lupron shot for over a year! I know what you're
going thru!!! I'm not taking anything now and the result is about to be
another surgery that my doctor really doesn't want to do! She thinks I
should try this or that...she doesn't know! It takes about 3-6 months to
come back in full force...but it doesn't just miraculously go away!!!
Good Luck...let me know what you decide! It's so nice to know I'm not
the only one! My doctor acts like I want to inflict pain on myself
because I am tired of "PILLS" after 16 years!
At Tue, 13 Dec 2005, LORRIE wrote:
>
>Just curious how they stage Endo and what is considered stage 4. I am
>having surgery 12/22. Have been on HRT (Vivelle) since 12/02, when I
>had my last ovary removed because of endometriosis, which wasn't even
>found until 10 years after my uterus was removed and it had strangulated
>one ovary, then had the last removed 12/02.. I can't have intercourse
>and get these horrible shooting pains up from my vagina that double me
>over in pain. I also have kidney stones and have pain in my flank, that
>I think are kidney stones, but I think it's endo/adhesions. I also have
>problems with bowel movements. My doc thinks my endo has possibly come
>back or I have alot of adhesions....anybody else have these problems?
>
>At Fri, 9 Dec 2005, anonymous@obgyn.net wrote:
>>
>>I have past stage 4 and also have adhesions. I am off all medicans. i
>>did the shots, orals, my doc tried me on it all. none of them helped. I
>>stoped taking orals in october. i had a laprascopy done 10-11 and in
>>novemeber i grew a bunch of cysts back in my overys. the hormones made
>>me an emotional messs. You have to remeber if you have stage 4 of endo
>>it can and will cause adhesions. So some of your pain can also be from
>>that. Good luck... Hope i was a little helpful
>> Vicki
>>
>>At Thu, 8 Dec 2005, kami wrote:
>>>
>>>Hey ladies. Hope everyone is doing well. I was wondering if any of
>>>you, especially those ladies who have stage IV endo like myself, have
>>>ever simply just gone off hormone treatments altogether. I'm 28 and
>>>have been on just about every kind of hormone one can think of for a
>>>number of years now straight. My body reacts adversely to lots of meds,
>>>including hormones and I finally decided to "chuck" it and say I want to
>>>give my body a break. I've never done so and I'm not sure how entirely
>>>smart it is...but I was wondering if anyone else has ever done so and if
>>>so, did your endo grow back rapidly and did you have problems rather
>>>soon after getting off all hormones.
>>>
>>>Thanks, ladies...
>>>
>>>--
>>>kami
>>>
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