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Stage IV and too young for a Hysterectomy

From: Amanda (anonymous@obgyn.net)
Wed Dec 7 21:15:31 2005


I just turned 21 and when they diagnosed me at 18 it was already way too out of control to do anything about. I am in pain everyday of my life which I know is not unusual with a case as bad as mine, but my problem is that I haven't got a period in over 3 years and I don't really feel like a girl anymore anyway. I have been on Lupron for the last year and a half and they don't ever plan on taking me off. It seems like this disease is taking over my life and there is nothing that I can do to stop it. I know that I have good doctors, and that they know what they are talking about, but how do you get past the feeling that you are in some ways not as good as everyone else and the longing to just remember what it's like to be normal. To me normal is a doctor appointment or physical therapy at the very least every other week. I know it's pretty bad when I start to even miss my period. I just think I'm way to young to be in menopause and this just isn't fair. Something good needs to happen. They have to be working on something that may help people like me.



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