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Re: question regarding endo and sex
From: Alyson (anonymous@obgyn.net)
Mon Dec 5 14:44:13 2005
Erin,
The endo pain I had manifested itself the smae way. I didn't
necessarily have pain during intercourse for the most part it was for
days afterward. Some of the things I did to try to deal with
were...using heating pads immediately afterward on my belly, taking
Naprocin (prescription) immediately afterward and for the next couple of
days. I can't say that I was pain free, but it was a bit more
tolerable. I also saw an accupuncturist regularly. Eventually I got to
the point of needing to have surgery again. I would say that before you
get too ahead of yourself, there may be other options available to you
before you have to get to the point of making a fertility altering
decision. Many women have had success with other drugs, with excision
surgery, etc. So there may be some other options to consider before you
get too discouraged with your prognosis. I know it is very frightening
to have this big unknown laid out for your future. I was shocked at
having to have two surgeries within a year and am a newlywed myself. Our
sex life is definately not the newlywed mania I thought it would be. It
makes me really happy that our relationship is so solid. I do wonder
what the future of our sexual relationship holds.
Best of Luck,
Alyson
At Mon, 5 Dec 2005, Erin wrote:
>
>Hi,
>I am looking for information and advice regarding endo. I was diagnosed
>and had a laparoscopy over a year ago, treated for advanced endo,
>although I most likely had it much longer than this. The surgery has
>been followed by treatment with Lupron, which has helped enormously. I
>was supposed to be on it for only 6 months, but within 2 months of being
>off it, the endo had returned to where I was before the surgery. My
>doctor has continued with the Lupron indefinately, saying that after I
>have been on the Lupron at least a year to 18 months, hopefully things
>will improve signifigantly. I have been blessed to be with a wonderful
>man for the last 5 years. He has been with me in all this, and we were
>just married Nov. 20. For various reasons, we waited to have sex until
>after we were married. I had heard of one of the symptoms of endo being
>pain during intercourse, and it crossed my mind, but during actual
>intercourse, I was fine. However, hours later, the pain kicked in with
>a vengence. And it was definately endo pain. I would have been ok with
>it if it lasted like an hour or two, but it lasted like 6 days, almost
>constantly after the last time we had sex. And after abstaining a
>little while, the pain has subsided almost entirely.
>As you can imagine, this is so upsetting to me. My husband and I had
>long discussed the possibility of not having children, and what we would
>do about it (adopt), but really hadn't thought of the possibility of not
>being able to have sex. In fact, he knows that I was in a lot of pain
>over our honeymoon, but does not yet know of its connection to sex. I
>wanted to be sure first, as I know the idea that being physically
>intimate causing me signifignat pain will tear him up. I am waiting to
>hear back from my doctor, but wanted to know has anybody encountered
>this before? Any advice? Can anything further be done? I think I am
>probably jumping the gun here, but if I had to choose, I would rather a
>course of treatment that eliminated our conceiving a child than having
>our sex life eliminated. I am just feeling surprised, a little
>overwhelmed, and paniced at the thought that this is w9hat our future
>holds.
>Anything any of you could tell me would be greatly appreciated.
>Thanks,
>Erin
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