Re: question regarding endo and sex
From: anonymous (anonymous@obgyn.net)
Mon Dec 5 13:34:39 2005
Erin,
Yes painful sex is a symptom of endo. As is pain for days, or weeks,
after sex, with or without orgasm. Ah the joys of this disease... It
sounds like you are pretty new to endo, so I don't know if you are aware
of this or not, but you are not supposed to be on Lupron indefinitely.
If I were you, I would seek out a second opinion from an endo specialist
before I put my body through any more Lupron. It has pretty nasty
side-effects, some of which don't come on until years later and the
longer you are on it, the more damage you will cause to your body. Try
going to http://www.centerforendo.com. Dr. Albee is a specialist and has a
lot of valuable info on his site.
Good luck and God Bless!
At Mon, 5 Dec 2005, Erin wrote:
>
>Hi,
>I am looking for information and advice regarding endo. I was diagnosed
>and had a laparoscopy over a year ago, treated for advanced endo,
>although I most likely had it much longer than this. The surgery has
>been followed by treatment with Lupron, which has helped enormously. I
>was supposed to be on it for only 6 months, but within 2 months of being
>off it, the endo had returned to where I was before the surgery. My
>doctor has continued with the Lupron indefinately, saying that after I
>have been on the Lupron at least a year to 18 months, hopefully things
>will improve signifigantly. I have been blessed to be with a wonderful
>man for the last 5 years. He has been with me in all this, and we were
>just married Nov. 20. For various reasons, we waited to have sex until
>after we were married. I had heard of one of the symptoms of endo being
>pain during intercourse, and it crossed my mind, but during actual
>intercourse, I was fine. However, hours later, the pain kicked in with
>a vengence. And it was definately endo pain. I would have been ok with
>it if it lasted like an hour or two, but it lasted like 6 days, almost
>constantly after the last time we had sex. And after abstaining a
>little while, the pain has subsided almost entirely.
>As you can imagine, this is so upsetting to me. My husband and I had
>long discussed the possibility of not having children, and what we would
>do about it (adopt), but really hadn't thought of the possibility of not
>being able to have sex. In fact, he knows that I was in a lot of pain
>over our honeymoon, but does not yet know of its connection to sex. I
>wanted to be sure first, as I know the idea that being physically
>intimate causing me signifignat pain will tear him up. I am waiting to
>hear back from my doctor, but wanted to know has anybody encountered
>this before? Any advice? Can anything further be done? I think I am
>probably jumping the gun here, but if I had to choose, I would rather a
>course of treatment that eliminated our conceiving a child than having
>our sex life eliminated. I am just feeling surprised, a little
>overwhelmed, and paniced at the thought that this is w9hat our future
>holds.
>Anything any of you could tell me would be greatly appreciated.
>Thanks,
>Erin
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