ENDO Messages for November, 2005: Re: Miserable!!

Re: Miserable!!

From: Diana (anonymous@obgyn.net)
Wed Nov 30 12:33:12 2005

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In reply to: Lori: "Re: Miserable!!"
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I've seen doctors who don't even try to say they are going to remove all the endo during the lap - they said they would "remove what they could" and if that didn't give me relief they would start me on Lupron. I had already told them I will NOT take Lupron - they just didn't care what I wanted. So I asked what if the Lupron doesn't work? And was told I'd need another lap or better yet - a hysterectomy because that would cure it. Well, I know that's not true! Doctors like that may as well go back to bloodletting and trepination as far as I'm concerned. Okay, I'm being extreme there, but it's aggravating to be told things I know are false!

Meredith - did he excise the endo, or burn it off? If he didn't excise, chances are he only got a fraction of the lesions and he put you on Lupron because he knew he didn't get it all. Was the procedure videotaped? That can really help if you need another surgery with a different doctor.

I'm really sorry to hear you are still having trouble after all this. Although I am against Lupron for myself, it does work for some women, and it often makes the endo flare up before it makes it better (same with birth control pills). Only you can decide what is right for you!

Best, Diana

At Tue, 29 Nov 2005, Lori wrote: >
>Hey Meredith, I just answered your last post. Sorry to hear you are
>feeling so crappy. Meds can definately mess with our emotions. don't
>feel bad if you don't agree with your doctor as to what is being done to
>help you. What I want to ask you is, if you just had a lap and they
>removed the disease, why are you on Lupron? Did they do it as a
>precautionary measure to remove any residue of endo? You have to do what
>you think is right, if you can't handle the Lupron, let your doctor know
>and try something else. You may not even need anything else if you just
>had a lap. Do you know how much endo and where it was? You should get a
>copy of the pathology report. Glad to hear you like your job, don't
>hear that to often. You may want to check into some natural remedies
>for your pain, and moods. God Bless, Lori L.
>
>At Tue, 29 Nov 2005, Meredith wrote:
>>
>>Once again I have missed another day of work because of the pain. Endo
>>is effecting every aspect of my life. I have also bee n very emotional
>>lately, I guess that is the Lupron talking. I have tried the pill
>>without any luck and recently had my first laparoscopy, so now I am
>>turning to lupron. I have heard mixed stories about this treatment and
>>was curious if anyone has had any positive results from it? Also, I was
>>curious if anyone had any alternative methods for dealing with the pain?
>>I have a very physical job, that I love, and would like to be normal
>>again. I think I have forgotten what it's like to be pain free. Any
>>suggestions would be awesome.
>>
>>--
>>Meredith
>>

Next message: Diana: "'When the Doctor Is in, but You Wish He Wasn't' - NYT article"
Previous message: Sudsey: "Re: Could they force you to take lupron for endo?... please help..."
In reply to: Lori: "Re: Miserable!!"
Next in thread: Kara: "Re: Miserable!!"

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