ENDO Messages for November, 2005: Re: Could they force you to take lupron for endo?... please help...

Re: Could they force you to take lupron for endo?... please help...

From: Alyson (anonymous@obgyn.net)
Wed Nov 30 10:06:16 2005

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Has your doctor discussed any other post op treatments with you such as Danazol, Aygestin, Senaryl.....each has their own side effects and considerations, but Lupron is not the only thing out there. I got to this point with my doctor at which time she told me to go on Lupron or have a baby. I sought a second opinion and am very happy with my treatment. The fact is this is your body. you have other medical conditions to take into consideration and if you do not feel that your doctor is taking that into account you should seek a second opinion. The doctor I saw for my second opinion balked at the idea that the previous doctor would tell me that my only options were Lupron or pregnancy. He discussed with me the other drugs that I mentioned and we decided that the best option for me was surgery followed by Aygestin. I think it also would not hurt to talk to your other doctors about what is going on with your endo and ask them for a referral to another ObGyn. Remember, no one can force you to take anything. Your health care is your decision and you have every right to deny any treatment that you are not comfotable with. Alyson

At Wed, 30 Nov 2005, Myriam wrote: >
>Yesterday I called my GYN in cry because the pain is getting so bad I
>cannot even bend over or walk straight anymore... In June I was put on
>Seasonal and after 3 weeks I had to stop it after gaining 30 pds of
>water. My heart was giving me weird rythms too. My GYN told me he
>wants to put me on Lupron. I have already osteoporosis and was told the
>lupron would be bad for me. On the top of that the fact that I reacted
>so badly to the pill, doesn't "encourage" me to believe I won't react
>badly to another hormone therapy. Another fact is I am supposed to take
>Tamoxifen for the next 5 years to reduce my breast cancer risk. The GYN
>said they can add the add-pack to reduce the bone problem. I believe
>that lupron and tamoxifen are not supposed to be giving together, hence
>I would delay the tamoxifen treatment to get the lupron... Another
>thing is I am scared to death of the lupron side-effects... My GYN is
>willing to do a laparoscopic surgery to remove most of the endo next
>week, but still wants me on Lupron after the surgery. If I do not use
>the lupron my GYN said he cannot help me anymore and I would have to
>find someone else... I am so at lost and scared, and the pain won't
>stop either... Please, help, I don't know what to do...

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