Re: My X Doc was actually yelling at me! Couldn't believe it.
From: Leigh (anonymous@obgyn.net)
Mon Oct 31 19:51:58 2005
Hey Lori D,
Thanks for the support. I appreicate it greatly. I know I'm a visual
person, I was hoping it would help my Doc.
How long were you on the Lupron? Did you hurt on it the whole time? Even
worse than you did before begining Lupron Treatment? I am so bloated and
hurting from my ribcage to my fur line. I've gained over 10lbs. I
realize that could also be atributed to sittin on my butt as much as
possible.
Hope your having a great day!
At Mon, 31 Oct 2005, Lori wrote:
>
>Wow, Leigh, good for you! I am very impressed with all the work you did.
>Great idea of marking your pain. I've never thought of that. YOu are
>awesome. AS for your doctor, what a ___________. (fill in the blank
>with whatever you choose :) Anyways, you handled yourself very well. I
>hope that you can find a good endo specialist.
>P.S.-- just a personal opinion-- I'm glad that you are off the Lupron!
>Wasn't a wonder drug for me either!
>Take care!
>Hugs~
>Lori D.
>
>At Sat, 29 Oct 2005, Leigh wrote:
>>
>>Hello Ladies,
>>
>>Well I had my 3month check up with my x doc yesterday, since beginning
>>Lupron. I went to that appointment with 2 folders full of the research
>>I have done over the last few months, a spread sheet of my daily
>>problems/symptoms/side effects, alot of pain, and some hope of having a
>>more educated discussion with my doctor. I even went so far as to take
>>a sharpie marker and draw on my body where exactly my pain was and what
>>kind of pain it was by wavy lines or x's.
>>
>>When she came into the room she asked how the Lupron was working out for
>>me. My reply was that I wasn't sure if it was really working for me,
>>and that these headaches I have now are killing me. And I'm still in a
>>great deal of Pelvic Pain.
>>She didn't even let me finish what I was saying.
>>
>>At that point she actually got in my face and in a very loud/yelling
>>voice said:
>>"YOU HAVE ENDOMETRIOSIS YOUR OPTIONS ARE LUPRON OR HYST! I DON'T KNOW
>>WHAT YOU WANT ME TO DO FOR YOU!"
>>
>>"LUPRON IS A NEW WONDER DRUG FOR ENDO! THERE ARE NO OTHER CHOICES OUT
>>THERE!"
>>
>>At that point because of my research and feeling she was full of it, I
>>raised my dress to show her my markings and replied:
>>
>>"THE WAVY LINES MEAN CONSTANT CRAMPING 24/7 PAIN, THE X'S MEAN SHARP
>>STABBING CRAMPS AND TENDERNESS. I'M BLOATED MY HEAD IS POUNDING, MAYBE
>>THIS 'WONDER DRUG' JUST ISN'T WORKING FOR ME! I think I made a mistake
>>by starting any kind of drug therepy before having another lap done so
>>we would know for sure what is going on in there. I AM NOT THE NIAVE
>>WOMAN who came in here 8 months ago for help. I do have a greater
>>understanding and would like to discuss it.
>>
>>Then I Went through some of the questions I took with me incase I got
>>flustered when I was there. Glad I did that cause I was definitly
>>flustered. I asked about the # of laps she has done, what form of
>>removal she used/preferred and why. I did not feel comfortable or like
>>many/most of the answers I was given. I'm glad I didn't let her cut me
>>open!
>>
>>At that point I asked her if she could refer me to an endo specialist in
>>the area, That the closest one I found was in Oregon. She actually
>>asked me what an Endo Specialist was. I was a little shocked and said "
>>A Doctor Who Specializes in Endometriosis Treatment" My confidence in
>>this doctor really dropped. I have learned more from this forum and the
>>net than any information given me by her.
>>
>>I guess there are 2 in Western Washington, Seattle and Tacoma. I will
>>find out on Wednesday hopefully which I may see.
>>
>>There was more but this post is long enough, to cut it short I won't be
>>getting another Lupron shot on Tuesday, I'm finishing the add/back (only
>>got a few left) Got a script for pain meds and rushed out the door with
>>the understanding when I left that I would not be back there. I was
>>told in the future until I find another doctor to see my reg doc (I dont
>>have much faith in her either)for pain management.
>>
>>I'm glad I have learned all that I have. I was alot more confident in
>>myself, and not ready to be pushed around or not be heard. I was not
>>rude or angry (on the outside) only direct. I am further frustrated at
>>this point, but glad I stood up for myself. I hope to find a Doc that
>>actually seems to care.
>>
>>To better days and better doc's..............................
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