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Re: My X Doc was actually yelling at me! Couldn't believe it.
From: Lori (anonymous@obgyn.net)
Mon Oct 31 12:29:33 2005
Wow, Leigh, good for you! I am very impressed with all the work you did.
Great idea of marking your pain. I've never thought of that. YOu are
awesome. AS for your doctor, what a ___________. (fill in the blank
with whatever you choose :) Anyways, you handled yourself very well. I
hope that you can find a good endo specialist.
P.S.-- just a personal opinion-- I'm glad that you are off the Lupron!
Wasn't a wonder drug for me either!
Take care!
Hugs~
Lori D.
At Sat, 29 Oct 2005, Leigh wrote:
>
>Hello Ladies,
>
>Well I had my 3month check up with my x doc yesterday, since beginning
>Lupron. I went to that appointment with 2 folders full of the research
>I have done over the last few months, a spread sheet of my daily
>problems/symptoms/side effects, alot of pain, and some hope of having a
>more educated discussion with my doctor. I even went so far as to take
>a sharpie marker and draw on my body where exactly my pain was and what
>kind of pain it was by wavy lines or x's.
>
>When she came into the room she asked how the Lupron was working out for
>me. My reply was that I wasn't sure if it was really working for me,
>and that these headaches I have now are killing me. And I'm still in a
>great deal of Pelvic Pain.
>She didn't even let me finish what I was saying.
>
>At that point she actually got in my face and in a very loud/yelling
>voice said:
>"YOU HAVE ENDOMETRIOSIS YOUR OPTIONS ARE LUPRON OR HYST! I DON'T KNOW
>WHAT YOU WANT ME TO DO FOR YOU!"
>
>"LUPRON IS A NEW WONDER DRUG FOR ENDO! THERE ARE NO OTHER CHOICES OUT
>THERE!"
>
>At that point because of my research and feeling she was full of it, I
>raised my dress to show her my markings and replied:
>
>"THE WAVY LINES MEAN CONSTANT CRAMPING 24/7 PAIN, THE X'S MEAN SHARP
>STABBING CRAMPS AND TENDERNESS. I'M BLOATED MY HEAD IS POUNDING, MAYBE
>THIS 'WONDER DRUG' JUST ISN'T WORKING FOR ME! I think I made a mistake
>by starting any kind of drug therepy before having another lap done so
>we would know for sure what is going on in there. I AM NOT THE NIAVE
>WOMAN who came in here 8 months ago for help. I do have a greater
>understanding and would like to discuss it.
>
>Then I Went through some of the questions I took with me incase I got
>flustered when I was there. Glad I did that cause I was definitly
>flustered. I asked about the # of laps she has done, what form of
>removal she used/preferred and why. I did not feel comfortable or like
>many/most of the answers I was given. I'm glad I didn't let her cut me
>open!
>
>At that point I asked her if she could refer me to an endo specialist in
>the area, That the closest one I found was in Oregon. She actually
>asked me what an Endo Specialist was. I was a little shocked and said "
>A Doctor Who Specializes in Endometriosis Treatment" My confidence in
>this doctor really dropped. I have learned more from this forum and the
>net than any information given me by her.
>
>I guess there are 2 in Western Washington, Seattle and Tacoma. I will
>find out on Wednesday hopefully which I may see.
>
>There was more but this post is long enough, to cut it short I won't be
>getting another Lupron shot on Tuesday, I'm finishing the add/back (only
>got a few left) Got a script for pain meds and rushed out the door with
>the understanding when I left that I would not be back there. I was
>told in the future until I find another doctor to see my reg doc (I dont
>have much faith in her either)for pain management.
>
>I'm glad I have learned all that I have. I was alot more confident in
>myself, and not ready to be pushed around or not be heard. I was not
>rude or angry (on the outside) only direct. I am further frustrated at
>this point, but glad I stood up for myself. I hope to find a Doc that
>actually seems to care.
>
>To better days and better doc's..............................
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