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Re: My X Doc was actually yelling at me! Couldn't believe it.
From: Leigh (anonymous@obgyn.net)
Sat Oct 29 23:12:45 2005
Hi Elaine thanks for the understanding and support. How long after you
stopped the Lupron did you stop having the Headaches? Mine have been
lasting 3-4 days at a whack.
Good luck with your research, it definitly helps. I hope you find the
doc you need as well. To better days.................
At Sat, 29 Oct 2005, Elaine wrote:
>
>Good for you for standing up to your doctor! I can't believe what an
>idiot she sounds like. Unfortunately, there are too many uneducated
>doctors out there that treat endo and not enough specialists to go
>around! My gyn doctor is the same way. My options were lupron, birth
>control, or hyst and I have tried all of them and still suffer! Only now
>I am educating myself like you, not waiting around for my doctor to
>decide what I should do. Unfortunately i am still searching for a
>doctor that will help me with what i have learned. Also, like you, I
>had horrible headaches on the Lupron and had to stop it after 4 months.
>No doctor would believe the Lupron could be the cause of my headaches
>but after I stopped it the headaches went away. Unfortunately, after my
>hyst even on hrt I am having those same headaches and this time there is
>no turning back. I totally understand your frustration and hope that
>both of us have better luck and treatment in the future. Hang in there!
>Sincerely,
>
>--
>Elaine
>
>At Sat, 29 Oct 2005, Leigh wrote:
>>
>>Hello Ladies,
>>
>>Well I had my 3month check up with my x doc yesterday, since beginning
>>Lupron. I went to that appointment with 2 folders full of the research
>>I have done over the last few months, a spread sheet of my daily
>>problems/symptoms/side effects, alot of pain, and some hope of having a
>>more educated discussion with my doctor. I even went so far as to take
>>a sharpie marker and draw on my body where exactly my pain was and what
>>kind of pain it was by wavy lines or x's.
>>
>>When she came into the room she asked how the Lupron was working out for
>>me. My reply was that I wasn't sure if it was really working for me,
>>and that these headaches I have now are killing me. And I'm still in a
>>great deal of Pelvic Pain.
>>She didn't even let me finish what I was saying.
>>
>>At that point she actually got in my face and in a very loud/yelling
>>voice said:
>>"YOU HAVE ENDOMETRIOSIS YOUR OPTIONS ARE LUPRON OR HYST! I DON'T KNOW
>>WHAT YOU WANT ME TO DO FOR YOU!"
>>
>>"LUPRON IS A NEW WONDER DRUG FOR ENDO! THERE ARE NO OTHER CHOICES OUT
>>THERE!"
>>
>>At that point because of my research and feeling she was full of it, I
>>raised my dress to show her my markings and replied:
>>
>>"THE WAVY LINES MEAN CONSTANT CRAMPING 24/7 PAIN, THE X'S MEAN SHARP
>>STABBING CRAMPS AND TENDERNESS. I'M BLOATED MY HEAD IS POUNDING, MAYBE
>>THIS 'WONDER DRUG' JUST ISN'T WORKING FOR ME! I think I made a mistake
>>by starting any kind of drug therepy before having another lap done so
>>we would know for sure what is going on in there. I AM NOT THE NIAVE
>>WOMAN who came in here 8 months ago for help. I do have a greater
>>understanding and would like to discuss it.
>>
>>Then I Went through some of the questions I took with me incase I got
>>flustered when I was there. Glad I did that cause I was definitly
>>flustered. I asked about the # of laps she has done, what form of
>>removal she used/preferred and why. I did not feel comfortable or like
>>many/most of the answers I was given. I'm glad I didn't let her cut me
>>open!
>>
>>At that point I asked her if she could refer me to an endo specialist in
>>the area, That the closest one I found was in Oregon. She actually
>>asked me what an Endo Specialist was. I was a little shocked and said "
>>A Doctor Who Specializes in Endometriosis Treatment" My confidence in
>>this doctor really dropped. I have learned more from this forum and the
>>net than any information given me by her.
>>
>>I guess there are 2 in Western Washington, Seattle and Tacoma. I will
>>find out on Wednesday hopefully which I may see.
>>
>>There was more but this post is long enough, to cut it short I won't be
>>getting another Lupron shot on Tuesday, I'm finishing the add/back (only
>>got a few left) Got a script for pain meds and rushed out the door with
>>the understanding when I left that I would not be back there. I was
>>told in the future until I find another doctor to see my reg doc (I dont
>>have much faith in her either)for pain management.
>>
>>I'm glad I have learned all that I have. I was alot more confident in
>>myself, and not ready to be pushed around or not be heard. I was not
>>rude or angry (on the outside) only direct. I am further frustrated at
>>this point, but glad I stood up for myself. I hope to find a Doc that
>>actually seems to care.
>>
>>To better days and better doc's..............................
>
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