ENDO Messages for October, 2005: Re: adenomyosis/endometriosis and hemangiomas survey

Re: adenomyosis/endometriosis and hemangiomas survey

From: Tara (anonymous@obgyn.net)
Sat Oct 29 20:29:31 2005

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Hi Jamie,

The Dermatologist we went to see wanted to know if my daughter also had the hemangiomas in her liver. If that then they wanted to give her immunosuppresant drugs. She had more than 20 around her liver with an ultrasound (they stopped counting at 20). Luckily my dad is a retired Dermatologist and when I told him he freaked out about the drugs. He said they'd go away on there own and luckily he was right. I'm also guessing they may need lots of estrogen to grow like in an adult female, which is probably why it got bigger at first and then subsided. You know how sometimes babies get breasts and acne for a week while the woman's hormones go through their body and then it goes away. She is 6 now and all of them are virtually gone with only minor dots left.

I know of some kids who've had them lasered off, but her largest was on her breast and they felt that might interfere with later breastfeeding.

I'm glad they did nothing. My friends whose kids had them also did nothing and they were fine. One who had a large one on her ear had trouble hearing for a couple of years, but once it shrank (at around 3 years) she was fine.

Glad to hear your back is in tip top shape, that must have been horribly painful to have cement placed in your spine.

The troubling part is will she be more suseptible to endo/adeno because of this? My sister has endo and I have adeno and I come from a long line of hysterectomies on my mom's side (before endo was more readily diagnosed). So her deck is pretty stacked genetically.

--
Tara

At Sat, 29 Oct 2005, anonymous@obgyn.net wrote:
>
>At Thu, 27 Oct 2005, Jamie wrote:
>>
>>Tara,
>>That's interesting.  The doctors found a hemangioma in my spine a couple
>>of years ago.  It was growing and causing tremendous pain.  They were
>>very perplexed because the patients they only see this in the elderly.  I
>>had back surgery in 2004 where cement was injected into my spine because
>>they were unable to remove it.  It was very painful after the surgery,
>>but now my back is good.
>>I do have scoliosis so they thought the two might be linked.
>>What did the doctors do with the hemangiomas found in children?
>>
>>--
>>Jamie G.
>>
>>At Thu, 27 Oct 2005, Tara wrote:
>>>
>>>Just wondering if any of you have had children with hemangiomas.  I was
>>>diagnosed with adenomyosis after my second child was born and my third
>>>child had hemangiomas all over and inside her body.  I'm guessing since
>>>they told me the hemagiomas were stray tissue that didn't know what to
>>>do with itself, it must be related to the adenomyosis which is pretty
>>>much the same especially since it was localized to my uterus.  I also
>>>have several friends who have endo and their children also had
>>>hemangiomas.  Kind of weird.  Anyone else experience this? Any of you
>>>Docs out there had this in your practice? Could be an interesting
>>>research study.
>>>
>>>--
>>>Tara
>>>
>--
>Just wondered if anyone could tell me anymore about adenomyosis. I am 25 and have just been diagnosed. I also have endometriosis and am in a bit of atate about the whole fertility thing. If anyone has any pearls of wisdom I'd appreciate it. Thanks
>

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