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Re: Not sure what's wrong and Dr.'s not listening!
From: Lori (anonymous@obgyn.net)
Fri Oct 28 23:16:31 2005
Doctors are funny people. You just never know what they are gong to
say. Don't know what a Pilonididal cyst is. I used to have most of
your symptoms during my period. I haven't had a period for
over....twenty years. I would vomit,have migranes, back pain,
bloating...all the fun stuff. I waited until my period was the
worst,huge clots and everything, then I called my doctor and made him
see me. lol. He then sympathized with me...and took out my uterious. I
already had two kids and didn't need it anymore. Try a heating pad and
some vitamins (Bs). Good luck.
At Fri, 28 Oct 2005, Lisa wrote:
>
>Hi Lori,
>
>I haven't gotten that far with my doc yet. .as far as asking if they
>were familiar with ENDO. I did call to say I wanted to speak to someone
>about it after my ultrasound this Monday. It was just after my last
>appt. that I started to piece this together. After posting my message
>I realized I'm not that good at relaying how I really feel. . I mean
>I'm having some severe pelvic pain and it's just not normal for me. Not
>for this long anyways. I've found that some doc's are just not very
>good listeners. . last year I had a Pilondidal Cyst - but was first
>diagnosed with Herpes! I went a WHOLE WEEK trying to explain to my
>partner how I could have gotten that STD. . only to find out the doc
>misdiagnosed me. .UG! I practically diagnosed myself with the PC from
>web research. Of course I saw a specialist and had it confirmed (and
>surgically removed) - but the hell I went through with that I hope to
>NOT repeat with this!
>
>As for the "signature" at the end. . I admittedly borrowed that from a
>friend of mine. There's just something about that saying that empowers
>me:)
>
>At Fri, 28 Oct 2005, Lori wrote:
>>
>>Hey Lisa, I know it stinks having to feel like crap and wait so long to
>>get relief. Sounds like you are doing the right thing by having tests
>>done. That is where we start. Have you asked your doctor is he/she is
>>familiar with endo? Be persistant in getting you appointments scheduled
>>and the results quickly so nobody drops the ball because they are to
>>busy. I would also let them know if you are in pain that the otc is not
>>helping. Why suffer if we don't have to. Definately sounds like
>>something is going on with you. Good luck to you. also...liked the
>>quote at the end of your post.
>>
>>At Fri, 28 Oct 2005, Lisa wrote:
>>>
>>>Hello. .I'm new to this board, and thanks to the internet I've found
>>>that alot of my symptoms are ENDO related (I think?). The symptoms are:
>>>
>>>1. Consistant vaginal bleeding. . .like a period but for 3 weeks now!
>>>Mild.
>>>2. SEVERE lower back pain - not in the bone but deep inside.
>>>3. Pain radiating to buttocks and sometimes even down the leg.
>>>4. Water retention
>>>5. VERY sore breasts, tender but hard. (bummer that's not the usual-
>>>ha!)
>>>6. Abdominal swelling (severe) and gas.
>>>7. Headache - turning to a bad migraine at least 4 times in the last 3
>>>wks.
>>>8. Nausea
>>>
>>>I know I'm missing something in there. .but some of the symptoms come
>>>and go so I'm really thinking about the ones that really bother me. The
>>>most persistant is the PAIN and HEADACHE/MIGRAINE. I've tried pregnancy
>>>tests but all THREE came back negative. An initial visit to the doc
>>>says there's no infection. I'm waiting for the PAP test results and
>>>have an ultrasound scheduled in 2 days.
>>>
>>>In the mean time, the Dr. suggested I take OTC meds and I almost
>>>screamed right then and there! I've already been taking Naproxin and
>>>Imitrex for the migraines. . NO WAY were OTC drugs going to squash
>>>this pain. I've had heavy periods before, and I've had period pain. But
>>>NONE have lasted this long w/so many other symptoms.
>>>
>>>I found most of the symptoms of ENDO to match mine accept the fertility
>>>one. I'm pretty sure I have no prob's there. So for the last few days
>>>I've been reading up on ENDO. . and I told my mom about it. . she
>>>said it runs in the family! I didn't know that until now. .but my mom's
>>>mom's mom had it, my mom's mom, my MOM. . and right on down the line!
>>>My mom also had an endoscopic pregnancy (where cells, tissue, bone, etc.
>>>grow in a mass).
>>>
>>>So - is any of this sounding familiar to other women out there? Am I on
>>>the right track seeing a gyno first and taking all these funky tests? I
>>>feel like I should be in the Emergency Room with all the pain I'm
>>>having. . .not waiting around for tests! It REALLY HURTS that bad. .
>>>
>>>Your thoughts are greatly appreciated. . .I'll keep reading the posts
>>>here.
>>>
>>>--
>>>No one can make you feel inferior without your consent - Eleanor Roosevelt
>>>
>--
>No one can make you feel inferior without your consent - Eleanor Roosevelt
>
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