Re: Not sure what's wrong and Dr.'s not listening!
From: Lisa (anonymous@obgyn.net)
Fri Oct 28 22:46:56 2005
Hi Lori,
I haven't gotten that far with my doc yet. .as far as asking if they
were familiar with ENDO. I did call to say I wanted to speak to someone
about it after my ultrasound this Monday. It was just after my last
appt. that I started to piece this together. After posting my message
I realized I'm not that good at relaying how I really feel. . I mean
I'm having some severe pelvic pain and it's just not normal for me. Not
for this long anyways. I've found that some doc's are just not very
good listeners. . last year I had a Pilondidal Cyst - but was first
diagnosed with Herpes! I went a WHOLE WEEK trying to explain to my
partner how I could have gotten that STD. . only to find out the doc
misdiagnosed me. .UG! I practically diagnosed myself with the PC from
web research. Of course I saw a specialist and had it confirmed (and
surgically removed) - but the hell I went through with that I hope to
NOT repeat with this!
As for the "signature" at the end. . I admittedly borrowed that from a
friend of mine. There's just something about that saying that empowers
me:)
At Fri, 28 Oct 2005, Lori wrote:
>
>Hey Lisa, I know it stinks having to feel like crap and wait so long to
>get relief. Sounds like you are doing the right thing by having tests
>done. That is where we start. Have you asked your doctor is he/she is
>familiar with endo? Be persistant in getting you appointments scheduled
>and the results quickly so nobody drops the ball because they are to
>busy. I would also let them know if you are in pain that the otc is not
>helping. Why suffer if we don't have to. Definately sounds like
>something is going on with you. Good luck to you. also...liked the
>quote at the end of your post.
>
>At Fri, 28 Oct 2005, Lisa wrote:
>>
>>Hello. .I'm new to this board, and thanks to the internet I've found
>>that alot of my symptoms are ENDO related (I think?). The symptoms are:
>>
>>1. Consistant vaginal bleeding. . .like a period but for 3 weeks now!
>>Mild.
>>2. SEVERE lower back pain - not in the bone but deep inside.
>>3. Pain radiating to buttocks and sometimes even down the leg.
>>4. Water retention
>>5. VERY sore breasts, tender but hard. (bummer that's not the usual-
>>ha!)
>>6. Abdominal swelling (severe) and gas.
>>7. Headache - turning to a bad migraine at least 4 times in the last 3
>>wks.
>>8. Nausea
>>
>>I know I'm missing something in there. .but some of the symptoms come
>>and go so I'm really thinking about the ones that really bother me. The
>>most persistant is the PAIN and HEADACHE/MIGRAINE. I've tried pregnancy
>>tests but all THREE came back negative. An initial visit to the doc
>>says there's no infection. I'm waiting for the PAP test results and
>>have an ultrasound scheduled in 2 days.
>>
>>In the mean time, the Dr. suggested I take OTC meds and I almost
>>screamed right then and there! I've already been taking Naproxin and
>>Imitrex for the migraines. . NO WAY were OTC drugs going to squash
>>this pain. I've had heavy periods before, and I've had period pain. But
>>NONE have lasted this long w/so many other symptoms.
>>
>>I found most of the symptoms of ENDO to match mine accept the fertility
>>one. I'm pretty sure I have no prob's there. So for the last few days
>>I've been reading up on ENDO. . and I told my mom about it. . she
>>said it runs in the family! I didn't know that until now. .but my mom's
>>mom's mom had it, my mom's mom, my MOM. . and right on down the line!
>>My mom also had an endoscopic pregnancy (where cells, tissue, bone, etc.
>>grow in a mass).
>>
>>So - is any of this sounding familiar to other women out there? Am I on
>>the right track seeing a gyno first and taking all these funky tests? I
>>feel like I should be in the Emergency Room with all the pain I'm
>>having. . .not waiting around for tests! It REALLY HURTS that bad. .
>>
>>Your thoughts are greatly appreciated. . .I'll keep reading the posts
>>here.
>>
>>--
>>No one can make you feel inferior without your consent - Eleanor Roosevelt
>>
--
No one can make you feel inferior without your consent - Eleanor Roosevelt
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