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Re: Introduction
From: Nichelle (anonymous@obgyn.net)
Fri Oct 28 15:57:27 2005
Thank you for your advice and encouragement. i will definitely check
out the article. i really do need help in dealing with this. thank
God, i don't really have any physical pain, the emotional pain is enough
to deal with. i can definitely understand your feelings about the
progression of your condition. i feel the same. it's hard to find out
that just a year after surgery i have another large growth despite the
fact that i had been on lupron for half the year. well, anyway, i hope
you have a speedy recovery and thanks for your help.
At Fri, 28 Oct 2005, Alyson wrote:
>
>Nichelle,
>I had surgery about three weeks ago. My doctor removed an orange sized
>endometrioma from my peritoneum and a couple of smaller ones from each
>of my ovaries. I know it is really hard to deal with all of the "what
>if's" associated with having this disease. Knowing that there is
>something growing inside you that you have relatively no control over is
>absolutely maddening. You can't help but wonder how long you have to
>have children, how bad its going to be the next time, when the pain is
>going to come back...and on and on. I have really had to work hard in
>the last couple of weeks since my surgery to litterally take things one
>day at a time. If I wake up and its a good day, fabulous. If I wake up
>and I don't feel so hot I have to really let it just be for that day. We
>can get so caught up in worrying about what we might lose that we forget
>to live. I cried for days after my surgery because I couldn't believe
>how fast my disease had progressed in a year...and I cried because I was
>terrified that by the time I am ready to have children I might not be
>able to...and then I decided I can't live that way. When the day comes
>I have to deal with what life presents me then. Trust me, I don't mean
>that lightly. Hopefully when you have your surgery you can discuss some
>other options with your doctor that may help you. I posted an articel
>about a week ago. The posting si "coping with chronic pain". It is a
>great article that really helped me get a handle on my feelings about
>all of this. Maybe it can be of some help to you too.
>Alyson
>
>At Fri, 28 Oct 2005, Nichelle wrote:
>>
>>Hello. This is my 3rd attempt at posting a message. Let me first start
>>by saying i'm glad i stumbled on to this. i have been looking for
>>others who are going through what i'm going through. i am 24years old
>>and found out last year that i had a severe form of endometriosis. i
>>had surgery in march to remove a cantaloupe sized cyst. they ended up
>>having to take my ovary and my appendix also. surgery was followed by 6
>>months of lupron and let me tell you that was not a lot of fun. i hoped
>>that would be the end, but i found out in may this year that i had
>>another large cyst growing on my remaining ovary. the news was
>>completely devastating. i have not had any children and it is my
>>greatest fear to lose the opportunity to have any. i want them more
>>than anything and although others try to say things as consolation, i
>>truly feel like my life would not be complete without them. i have
>>struggled (and still am struggling) with feelings of bitterness,
>>resentment, self pity. this is the hardest thing i've ever had to deal
>>with. this cyst is smaller but still fairly large (the size of a fist).
>>so now i have surgery scheduled for Nov. 22nd. am very scared. just
>>wanted to talk to someone cause none of my friends or family can truly
>>understand what i'm going through.
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