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Re: Introduction
From: Nichelle (anonymous@obgyn.net)
Fri Oct 28 15:47:34 2005
Thank you for your words of encouragement. I really am trying to not be
so negative and afraid, it just gets to be a lot sometimes. i get very
sad sometimes, but i'm trying to work through it. my surgery was
initially scheduled for August but i just couldn't handle it then. i
thought if i took some time it would be easier and it has to an extent.
i think a reason that i have so many reservations is that it seemed like
i was being passed around, like everyone was saying "oh, i can't handle
this, you need to see someone else". i, like you, i have a case that is
the worst my first doctor has seen. she sent me to a reproductive
specialist and he was very confident that he could help me. that is
until he reviewed my operative notes. then he told me that i needed to
have a gynecologic oncologist perform the surgery due to my extensive
scarring and he would just be there to add the finishing touches. i
wish i had the confidence you have and i admire your strength. yes, i
have my mother to go with me to surgery and i also have my boyfriend who
has been very supportive. As for your situation, i will keep you in my
prayers. thanks again, Nichelle
At Fri, 28 Oct 2005, Stephanie wrote:
>
>Nichelle, I don't have a whole lot to say except that I sympathize with
>you as I am in the same boat. I am facing a hysterectomy next month
>(Nov 28) and deperately want my own children. I appreciate your
>frustration at others well-meant-but not-well-recieved consolations
>("well, there's always adoption" - duh, i'm adopted in case you
>forgot!). I always try hard to be grateful for their support, they are
>trying after all, but they have absolutely no clue... and for me it
>hasn't gotten easier with time, as my 'd-day' approaches it only ges
>harder.
>By the way, I also have severe stage iv with a lot of adhesions - the
>worst case my surgeon has seen, and he's done this for a while. Although
>I have had at least 3 endometriomas, they were not as large as yours...
>I try to take each day as it comes and face it the best I can. I am not
>in control of what is happening, so I try hard not to get too bogged
>down in the misery of pain and lost opportunities. I can only hope that
>this surgery will fix the problem and remember that I am not in control,
>He is, and I try to leave it there. Sometimes easier said than done.
>As far as surgery, for whatever reason I am not afraid of that. I trust
>my surgeon to take good care of me, and so far that has not been a
>problem. I seem to take a while to trust someone, but when I do it's
>pretty much for life... So I have that going for me I guess. Don't get
>me wrong, I'm not looking forward to it per se, the pain will be tough I
>understand, but hopefully it'll be worth it from the standpoint of the
>physical pain I am going through. (Now my head, that's another
>story...).
>Do you have someone who can go with you to the surgery and be there for
>you afterwards to help you through this? My family is nowhere near here,
>so I rely heavily on good friends.
>hmm, guess I did have some to say...
>Nichelle, I hope the best for you. Know that you are not alone even
>when you feel like you are. Here's to pain-free days (mentally and
>physically!).
>Stephanie
>
>At Fri, 28 Oct 2005, Nichelle wrote:
>>
>>Hello. This is my 3rd attempt at posting a message. Let me first start
>>by saying i'm glad i stumbled on to this. i have been looking for
>>others who are going through what i'm going through. i am 24years old
>>and found out last year that i had a severe form of endometriosis. i
>>had surgery in march to remove a cantaloupe sized cyst. they ended up
>>having to take my ovary and my appendix also. surgery was followed by 6
>>months of lupron and let me tell you that was not a lot of fun. i hoped
>>that would be the end, but i found out in may this year that i had
>>another large cyst growing on my remaining ovary. the news was
>>completely devastating. i have not had any children and it is my
>>greatest fear to lose the opportunity to have any. i want them more
>>than anything and although others try to say things as consolation, i
>>truly feel like my life would not be complete without them. i have
>>struggled (and still am struggling) with feelings of bitterness,
>>resentment, self pity. this is the hardest thing i've ever had to deal
>>with. this cyst is smaller but still fairly large (the size of a fist).
>>so now i have surgery scheduled for Nov. 22nd. am very scared. just
>>wanted to talk to someone cause none of my friends or family can truly
>>understand what i'm going through.
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