ENDO Messages for October, 2005: Re: endometriosis in the bladder

Re: endometriosis in the bladder

From: nin (anonymous@obgyn.net)
Fri Oct 28 12:34:06 2005

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Hi, My name is nini and i also suffer from endo of the bladder. It was just on one side but it has grown to the other side of my body...............................................At Sun, 28 Mar 2004, Bre wrote: >
>Even if it isn't endo in your bladder, it may be something called
>interstitial cystitis. My endo is centralized on my bladder (meaning
>the thickest parts are there). After many tests, this was the
>diagnosis. Treatments can vary, but it may be something you want to
>talk to your doctor about. You will most likely need to see a
>urinologist.
>
>At Sun, 28 Mar 2004, anonymous@obgyn.net wrote:
>>
>>At Tue, 9 Sep 2003, Michelle wrote:
>>>
>>>Kim
>>>Hay girl, Michelle here again. I would really suggest you take those
>>>spams pills, he probably gave you pyridiem, which is what I take for the
>>>horrible spasms I have. If you dont this could really get worse, I mean
>>>I know they are telling you this isnt a UTI but it sure sounds like it
>>>is, I dont have urgency to pee either, but its very painful when I do
>>>go, and its hard to actually release to just let it go, that takes a
>>>while. Please if not for you do it for me, please take those spasm
>>>pills, I mean if you put off a bladder infection to long it will go into
>>>your kidneys I had no idea what a UTI or a bladder infection was 3
>>>months ago, so I just let it go, I thought maybe my med's I was taking
>>>was making it hurt to pee but then I found out that my bladder infection
>>>was so bad it go up into my kidney's that is horribly painful your back
>>>hurts like crazy, it does sound like a bladder infection although I am
>>>not a doctor I would be taking those pills he gave them to you for a
>>>reason, sweetie I dont want you to get more sick. Take care and keep me
>>>informed of what's going on and how your feeling and what they find out
>>>for ya k?
>>>Thanks girl,
>>>Michelle I.
>>>
>>>>I am scheduled for a lap on 9/15, so I haven't been "diagnosed" w/endo.
>>>>but I sure have all of they symptoms! Hoping to get some answers then.
>>>>More recently I've been experiencing pain when I urinate. It's not a
>>>>burning sensation, rather pain! In my bladder area and "inside" my
>>>>uretha?? I have been checked 3 times (my urine) for bladder infection
>>>>/UTI, nothing has showed. It doesn't hurt every single time, but more
>>>>times than not. I am going a "normal" amount at a time, it's not like a
>>>>UTI where you have urgency and only go a little. Anyone else
>>>>experienced this? The last time I went to our health center the PA on
>>>>call said my urine was fine, but prescribed me med. for bladder spasms,
>>>>I didn't take it. I really don't know what's causing so I figured I'd
>>>>put up w/ it for another week, rather than take something to "cover it
>>>>up. Thanks for any feedback!
>>>>
>>>>At Thu, 4 Sep 2003, anonymous@obgyn.net wrote:
>>>>>
>>>>>At Fri, 24 Sep 1999, Stacy wrote:
>>>>>>
>>>>>>I have it on the outside of my bladder. Surely the doc would have told me if it was inside, too? I know he looked in there when I had my lap. The first thing I asked the nurse was if I'd had a catheter or something in there. It HURT!!!
>>>>>>
>>>>>>Stacy
>>>>>>
>>>>>>--
>>>>>>
>>>>>>On Fri, 24 Sep 1999 17:48:44 Dionna Donna wrote:
>>>>>>>Do any of you have endometriosis of the bladder? Like painful urination,
>>>>>>>bloating, and bloody urine? When I told my doctor that I thought I might
>>>>>>>have endo of the bladder he looked at me like I was nuts. He said it
>>>>>>>wasn't that he believed me--it was just that it was rare. Well, he
>>>>>>>believed me after he did my laparoscopy and it showed endo of the
>>>>>>>bladder. I would like to know how many of you ladies have the same
>>>>>>>problem.
>>>>>>>
>>>>>>--
>>>>>>iVillage.com: The #1 Women's Network -- Real Solutions for Real Women.
>>>>>>Join the most exciting community of women on the web!
>>>>>>iVillage.com's FREE membership gets you private email,
>>>>>>your own home page, special discounts and sweepstakes,
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>>>>>>
>>>>>--
>>>>>I have it on the inside of my bladder. Painful, no kidding.What have you done to correctthe problem
>>>>>
>>>>--
>>>>Kim Bills
>>>>
>>--
>>I was diagnosed with pelvic endometriosis about 3 years ago. Many of my symptoms
>>had to do with stomach aches, back pain and frequent trips to the bathroom. When
>>I threw out the idea to my specialist that I could have endometriosis of the
>>bladder - he looked at me like I was crazy. So of course when he did the
>>lap three years ago he dismissed my thoughts and didn't check the outside of
>>my bladder. Now I am on the birth control pill consistantly so I do not menustrate.
>>This of course is helping the majority of my pain and symptoms. But I'm still
>>experiencing back pain, many trips to the bathroom and pain when I feel the need
>>to go and pain if I do go.
>>So, I am another woman who understands what you ladies are going through.
>>Question is now....what steps do we take next to find relief for ourselves.
>>

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