ENDO Messages for October, 2005: Re: Introduction

Re: Introduction

From: Stephanie (anonymous@obgyn.net)
Fri Oct 28 12:30:12 2005

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Nichelle, I don't have a whole lot to say except that I sympathize with you as I am in the same boat. I am facing a hysterectomy next month (Nov 28) and deperately want my own children. I appreciate your frustration at others well-meant-but not-well-recieved consolations ("well, there's always adoption" - duh, i'm adopted in case you forgot!). I always try hard to be grateful for their support, they are trying after all, but they have absolutely no clue... and for me it hasn't gotten easier with time, as my 'd-day' approaches it only ges harder. By the way, I also have severe stage iv with a lot of adhesions - the worst case my surgeon has seen, and he's done this for a while. Although I have had at least 3 endometriomas, they were not as large as yours... I try to take each day as it comes and face it the best I can. I am not in control of what is happening, so I try hard not to get too bogged down in the misery of pain and lost opportunities. I can only hope that this surgery will fix the problem and remember that I am not in control, He is, and I try to leave it there. Sometimes easier said than done. As far as surgery, for whatever reason I am not afraid of that. I trust my surgeon to take good care of me, and so far that has not been a problem. I seem to take a while to trust someone, but when I do it's pretty much for life... So I have that going for me I guess. Don't get me wrong, I'm not looking forward to it per se, the pain will be tough I understand, but hopefully it'll be worth it from the standpoint of the physical pain I am going through. (Now my head, that's another story...). Do you have someone who can go with you to the surgery and be there for you afterwards to help you through this? My family is nowhere near here, so I rely heavily on good friends. hmm, guess I did have some to say... Nichelle, I hope the best for you. Know that you are not alone even when you feel like you are. Here's to pain-free days (mentally and physically!). Stephanie

At Fri, 28 Oct 2005, Nichelle wrote: >
>Hello. This is my 3rd attempt at posting a message. Let me first start
>by saying i'm glad i stumbled on to this. i have been looking for
>others who are going through what i'm going through. i am 24years old
>and found out last year that i had a severe form of endometriosis. i
>had surgery in march to remove a cantaloupe sized cyst. they ended up
>having to take my ovary and my appendix also. surgery was followed by 6
>months of lupron and let me tell you that was not a lot of fun. i hoped
>that would be the end, but i found out in may this year that i had
>another large cyst growing on my remaining ovary. the news was
>completely devastating. i have not had any children and it is my
>greatest fear to lose the opportunity to have any. i want them more
>than anything and although others try to say things as consolation, i
>truly feel like my life would not be complete without them. i have
>struggled (and still am struggling) with feelings of bitterness,
>resentment, self pity. this is the hardest thing i've ever had to deal
>with. this cyst is smaller but still fairly large (the size of a fist).
>so now i have surgery scheduled for Nov. 22nd. am very scared. just
>wanted to talk to someone cause none of my friends or family can truly
>understand what i'm going through.

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