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Re: cent lap no endo removed!From: Elaine (anonymous@obgyn.net)Sat Oct 15 21:33:28 2005
That makes me so mad to hear that your doctor didn't remove any of the endo! My doctor did the same thing to me. Only he said something like "it was too extensive". I believe these are excuses for inexperience. I too was given lupron but had to stop it after 4 months because it caused severe headaches for me. I couldn't tolerate any of the addback therapy either. It did provide some relief though for a few months as far as endo pain and periods. Eventually, after a few months off the lupron, the pain came back worse than before and I ended up having a total hysterectomy several months ago. Still he didn't remove any remaining endo on my bladder, appendix, or intestines. I was desperate for relief and didn't take the time to really find an endo specialist or get more opinions, although I did fight with my insurance company to see an endo specialist and was denied because there weren't any in my network of providers. I feel much better pain wise but still have mild cramping in my pelvic and groin area and occasional sharp pains there that last only a few minutes. And the menopausal symptoms are horrible! If I were you I would get a copy of your medical records related to the endo and get a second opinion or more if you have to, preferably at a different medical facility. Lupron is not the only option if you aren't comfortable with it, and I believe removal of the endo is still your best bet. Yes, there is a chance of regrowth or more adhesions, but you can also get months or even years of relief if you find someone who knows how to remove it properly and all of it (excision instead of just burning it off for example). There is also Depo Prevera injections to try (a form of birth control but progesterone only I think), Letrozole (an arometese inhibitor which has shown success with some endo patients), and natural approaches such as change of diet, acupuncture, etc... Go to another doctor and ask specific questions about what approach they would take to treat your endo, what techniques they use for performing laparoscopy and whether they are comfortable removing it in all the places you have it, how many laparoscopies for endometriosis have they performed in the past, what types of drugs or hormone therapy they would offer, and what kind of pain control they use. Also, if you haven't already, get a copy of the book "Endometriosis Sourcebook" written by the Endometriosis Association. You can find this book at the library or Barnes and Nobles, or order it online. This book goes in to a lot of detail about what kinds of questions to ask your doctor and what types of treatments are available out there for endometriosis. I hope this helps some. Hang in there and keep searching until you get some relief! Good luck to you!
At Sat, 15 Oct 2005, MT wrote:
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